tag:blogger.com,1999:blog-257209375427878024.post2618464201073760054..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: December 2: Happy and HumbleBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-257209375427878024.post-24145716070754065542010-12-03T19:43:38.111-08:002010-12-03T19:43:38.111-08:00I had heard the Starfish story way back when, but ...I had heard the Starfish story way back when, but had forgotten it! Glad to told it, well worth hearing it again, because it is so true!<br /><br />Awesome on the fundraising!<br /><br />Love this picture of beautiful Bella.<br />TinaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-7715659331313866482010-12-03T18:36:35.374-08:002010-12-03T18:36:35.374-08:00Hey Tim--love the starfish story. I work in a spe...Hey Tim--love the starfish story. I work in a special ed department within a school district and the starfish is our mascot all because of this story. It has become an "emblem" of sorts for our department and I even have clothing with the starfish on it. I think of it often in my work as a music therapist. I am leading a run/walk group in our office and we call ourselves Team Starfish. Good stuff. Speaking of running...how is that alien??Michelle Khttps://www.blogger.com/profile/16717036934905798555noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-41073690912951058342010-12-03T16:36:53.794-08:002010-12-03T16:36:53.794-08:00I love that story. I have heard it before and I lo...I love that story. I have heard it before and I loved reading it today. I am so glad to be a part of "Bella's Warriors", as a previous commentor called us. :0) I look forward to working with everyone on raising money for EB. <br /><br />The picture of Bella is great today. She looks so refreshed and happy after her bath!!<br /><br />Lots of Love, <br />Amber, Craig, Malorie(2 1/2), and Liam(11 mos.)<br />The McLaughlin Family<br />Moreno Valley, CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-76151095151994200092010-12-03T16:34:01.832-08:002010-12-03T16:34:01.832-08:00Keep on keepin' on! I feel you are right on t...Keep on keepin' on! I feel you are right on to ask for fundraising pledges to PUCK. Finding a cure for EB is your passion and your words on fundraising are passion-filled. Any issue I may have with your asking (and I don't have an issue) would be my issue and not something that should be put upon you. I appreciate your heart and commitment...that's what I'm thinking when I read your blog. So...keep on keepin' on!<br /><br />I think of your family daily. I am in awe of your strength and your ability to stay in the moment through the ebb and flow. Much love and continued healing to your family. Your family remains in my prayers.<br /><br />-GAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-63496152096129550202010-12-03T14:32:35.364-08:002010-12-03T14:32:35.364-08:00My dad would tell us the starfish story when we we...My dad would tell us the starfish story when we were kids and we still love it! So glad to hear that you are raising that money for this great cause, for the health and safety of these innocent children, and for their hardworking families! God continues to bless you all and blesses us by crossing your paths! As a family, we are looking for little ways here and there to make donations to PUCK when we can!!! We are really always praying for you, Ang, Ali and your families!The Liconashttps://www.blogger.com/profile/08224099578506132814noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-73312257919356836342010-12-03T11:29:24.203-08:002010-12-03T11:29:24.203-08:00Love the starfish story, I hadn´t heard it before ...Love the starfish story, I hadn´t heard it before but will make sure my boys hear it. I too have been quiet during all the fundraising, I was feeling a little guilty but like another commenter said you have the right to write what you want on your blog. Everyone needs to be passionate about something and you have your something...I realized that I should pick up on your passion and do the samething. I was feeling guilty because I donate to research but it isn´t EB. I have MS and so the majority of my donations go to finding it´s cure or at least a better medication...I realized that I you were talking to me but you also understand when it comes to these things that we look at our own lives and felt that you (and Bella) would understand if I opted out. <br /><br />I gain strength, faith and opptimism from you and your words and for that I am thankful.<br /><br />I continue to stop by daily and pray for healing for you all.<br /><br />JeniJeni Mullenixhttps://www.blogger.com/profile/05216257227456439244noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-26567648363612704942010-12-03T09:17:44.399-08:002010-12-03T09:17:44.399-08:00I came across this in US Magazine & thought yo...I came across this in US Magazine & thought you might be interested to pass the information along on your blog. Celebrity endorsements never hurt!!! <br /><br />http://www.tinyprints.com/featured-designers/celebrities/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-54888007891957123132010-12-03T07:39:32.457-08:002010-12-03T07:39:32.457-08:00Congratulations! Nothing wrong with asking. It&#...Congratulations! Nothing wrong with asking. It's your blog. <br />Your approach was passionate and although it conveyed to some of us "If you cared, you would donate whatever free time you have to raising money for this cause." <br />It's a fine line and for some you crossed it. It hurt some feelings. I highly doubt anyone wanted to make you feel attacked, just aware. <br />Although I am not "in", I will continue to donate to PUCK.<br />It's simple really, you apologized.<br />I WOULD like updates how your fundraising is going and if you have a different tab or if I have access I will follow it and pray for it. I believe you are going to do it. I know you are with your team of Bella Warriors! I'm excited for you and EB. I'm proud of you and Ang for dedicating to making sure NO other children die from EB or from the treatments trying to cure them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-6905994454506808842010-12-03T07:37:24.014-08:002010-12-03T07:37:24.014-08:00Hi Tim: Just checking in to see how you guys are ...Hi Tim: Just checking in to see how you guys are holding up. I know you are still numb, that helps a little bit, doesn't it?<br />Keep up the great work, we WILL find a cure for EB. Meg and I are concentrating on a fund raiser for DEBRA right now, what would we all do without DEBRA??? We would love to send DEBRA a huge check in February, which would have been Leah's 2nd Birthday. Still missing her!!<br />Take care and Keep the Faith. Love and Hugs Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-9644532191771460242010-12-03T01:15:12.741-08:002010-12-03T01:15:12.741-08:00I didn't know the story of the starfish and I ...I didn't know the story of the starfish and I loved it. I was very worried for you these past days with all the comments. I'm glad that you came back stronger. well done for the $10,000.00!!!<br />Thank you for keep posting.<br />Praying for your family always.<br />Love,<br />MarianaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-84548734260168605012010-12-03T00:00:21.954-08:002010-12-03T00:00:21.954-08:00Oh Bella Doll! This picture pulled my heart a litt...Oh Bella Doll! This picture pulled my heart a little too much tonight....I miss that girl!<br />Sounds like you hit a relief pocket- just from reading the comments posted after yesterdays entry, you can tell that the fire and admiration for Bella has not let down. Regardless of everyone's decision, at the end of the day, we ALL still love Bella, we ALL support you and we ALL are still here checking in every day & night! It's not easy to walk a fine line, and it surely isn't easy to please everyone. However, your ultimate goal is to include Bella in your everyday, to continue her legacy and to ultimately follow through with your commitment to Drs Wagner/Tolar, in finding a cure for EB. <br />You know what I say to all that- RIGHT.ON!<br /><br />nicolenicolenoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-25807857154829842922010-12-02T23:45:34.883-08:002010-12-02T23:45:34.883-08:00I LOVE the pictures of EB babies taken right after...I LOVE the pictures of EB babies taken right after bath. They look so "clean" and free and at ease without all their bandage burden!<br /><br />I think this has been the first time that i haven't felt my heart sink upon seeing Bella's picture at the end of the post. I guess i am starting to heal, too...<br /><br />love and hugs<br /><br />(and a sigh of relief for you after these difficult days some of us forced you into... ;-)jardinera lindahttps://www.blogger.com/profile/16932704231886236979noreply@blogger.com