tag:blogger.com,1999:blog-257209375427878024.post3755039241506835291..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: July 6th: Day +4Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-257209375427878024.post-19509442660917692172010-07-07T21:16:55.673-07:002010-07-07T21:16:55.673-07:00Praying for Bella to heal, heal, heal!!!!!!!!!!!!!...Praying for Bella to heal, heal, heal!!!!!!!!!!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-58994817525270761772010-07-07T19:01:23.872-07:002010-07-07T19:01:23.872-07:00Yes, letting God is a tough one to remember to do ...Yes, letting God is a tough one to remember to do all the time! Lots of prayers for new cell growth and healing!Doug Gleasonhttp://verizon.netnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-80971364750662901932010-07-07T18:42:12.363-07:002010-07-07T18:42:12.363-07:00Ummm...yah...you are not alone. I too have trouble...Ummm...yah...you are not alone. I too have trouble letting go and letting God. I often think MY plan is the "best" plan...then God shows me I don't know a thing. <br />Just know we are praying...all the time...you and your family are wrapped in prayer.<br />Kathryn<br />KC, MOKathrynhttps://www.blogger.com/profile/13393971874722033232noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-83573810613031854212010-07-07T17:54:02.672-07:002010-07-07T17:54:02.672-07:00I am so sorry to hear about your PT event. After ...I am so sorry to hear about your PT event. After reading Daylon's blog I think you need poster board shouting over your babies head, "Beware - P.T. will be shot on sight." I'll bet that will not be needed though. I'll bet someone is in serious hot water after that boo boo. I'll bet they got raked over the coals deservedly. <br />I am so sorry that happened.Cherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-71049709351149222922010-07-07T17:20:18.515-07:002010-07-07T17:20:18.515-07:00Praying for Bella! I hope today was a better day....Praying for Bella! I hope today was a better day.Torinoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-12578780651886647742010-07-07T16:46:24.549-07:002010-07-07T16:46:24.549-07:00Dude, after the July 3rd posting I am glad I am on...Dude, after the July 3rd posting I am glad I am only your accountant, hahaha. Just watched my country fall to Spain, go Netherlands! Guess were we have been since July 4th at noon ...... CHOC Mission. Who would have thought I simple knee injury could have you in the hospital for this long. It's Cody. Things are looking good and he should go home tomorrow. Sorry to tell you this, but the couch actually converts to a bed that is big enough for me, I feel for you. Coolest part of our stay here has to do directly with you. Monday evening a harpist came and played in the hallway, we all came out of our room to listen and enjoy and were bummed when she left. The music you play and have played for patients is an awesome thing, thank you and thanks to God for blessing you with such a gift. <br /><br />We are all praying a lot for Bella and all of you. Love and Prayers.<br />Russ, Jen, Cody, Casey, & CelesteRussell Jhttps://www.blogger.com/profile/17085523775185928778noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-58378095421616937572010-07-07T16:13:32.613-07:002010-07-07T16:13:32.613-07:00Ok. So, I'm with you 100% on the PTs. They dro...Ok. So, I'm with you 100% on the PTs. They drove me nuts yesterday too! I'm sorry they did so much damage to her tube. I am so ticked just thinking about it. I should have told her to stay away from Bella too! :) It was fun to run into at lunch yesterday! I should have known you'd be there to watch the game on their big tvs!! See you in the halls!Jennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-31577068646932848132010-07-07T11:18:03.499-07:002010-07-07T11:18:03.499-07:00On the bright side - you didn't have to make t...On the bright side - you didn't have to make the dreaded crib change, right? But gosh, for so many (what would normally seem minor) things to go wrong in the same 24-hour period is more than anyone should have to handle. You did great, Dad; congratulations! And, apparently, so did Bella.<br />Like my Sara, I'm so happy for Ali's great day at preschool! How wonderful it was to get the call saying she was doing beautifully. You are blessed to have her involved in a program that makes that kind of effort to ease your mind.<br />Hoping for some positive news in your next blog. You ALL remain in my thoughts and prayers.Jack and Molly's Nananoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-19697870608456990222010-07-07T09:22:25.037-07:002010-07-07T09:22:25.037-07:00I can't stop thinking how lucky Bella is to ha...I can't stop thinking how lucky Bella is to have such a loving family. Prayers coming her way for sure... may she be healed.<br /><br />P.S. I have an inner control freak too... a "pushy" one at that :)Pati @ A Crafty Escapehttps://www.blogger.com/profile/17176098739115609538noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-21649561499200912352010-07-07T09:16:55.518-07:002010-07-07T09:16:55.518-07:00Oh. This post terrified me! I would say "poor...Oh. This post terrified me! I would say "poor Bella" but at least she will have no memory of this...but POOR TIM! So sorry you will. At least the scale was an easy fix...and Ali rocked preschool! That made me happy! Thanks for the update. Hope you continue to be the wonderful control freak that you are! Your Bella wouldn't gave it any other way!Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-75782638442420692442010-07-07T09:06:06.889-07:002010-07-07T09:06:06.889-07:00Control Freak....Please! Just a loving, caring, wo...Control Freak....Please! Just a loving, caring, wonderful, proactive Father guarding and protecting his cub. Sometimes you have to growl furiously like a lion to get people to listen. Don't beat yourself, I praise you and commend you. You have committed yourself to your family and God, you are doing what needs to be done. I hope God will open up the minds of all the staff there at the hospital. If Bella only knew what she is doing, how many lives she is touching, the braverly of you all.I will be focusing today's prayers and visualizing Ali's cells integrating with Bella's. I will be praying for her wounds to heel and her bandage change pain free with ease and comfort. Keep doing what you are doing Tim. Thinking and praying for you all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-38822419624369723142010-07-07T08:28:56.972-07:002010-07-07T08:28:56.972-07:00You get Dad of the Year award for what you do for ...You get Dad of the Year award for what you do for your family. Will continue to praying for all of you. smg in KSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-35657120684497462682010-07-07T07:00:02.976-07:002010-07-07T07:00:02.976-07:00If ever anyone deserved the title "Super Hero...If ever anyone deserved the title "Super Hero,"<br />it's you. You are not being a contol freak, you are being a much needed intelligent and hypervigilant Dad. And, yes, trust God to do the rest. Try to find some creative ways to pace yourself. Love you!MomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-71941409053449043782010-07-07T06:11:25.891-07:002010-07-07T06:11:25.891-07:00Prayers continuing for sweet Bella. And may I say...Prayers continuing for sweet Bella. And may I say what an amazing little girl your Ali is as well. Those pictures of her - especially the ones with the dogs - just melted my heart. Blessings, blessings, and more blessings to your precious family!<br /><br />Susan<br />A friend in NCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-37860481145684150302010-07-07T05:31:45.582-07:002010-07-07T05:31:45.582-07:00It's so disappointing to witness so many disco...It's so disappointing to witness so many disconnects in a place of care, but it's just AWESOME that Miss Bella does not need to be moved just now.<br />Praying...Bella, beautiful baby girl...be well.<br /><br />PS...Tim, maybe Bella picked you because she knew your inner control freak would guard her with it's life?? Blessings to all of you, all the time <3<br />Donna<br />West Virginiadonnahttps://www.blogger.com/profile/17415671160713121008noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-60921737914951196192010-07-07T05:29:12.442-07:002010-07-07T05:29:12.442-07:00I think my inner control freak wants to HURT that ...I think my inner control freak wants to HURT that nurse and PT! <br /><br />Hopefully they didn't cause any damage - praying for a smooth bandage change today!<br /><br />Janel Waters<br />St Augustine, Fl<br />(36 - RDEB)Janelhttps://www.blogger.com/profile/12741507889298351296noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-27526313483975876552010-07-07T05:15:17.866-07:002010-07-07T05:15:17.866-07:00Wow - you parents of EB kids absolutely amaze me! ...Wow - you parents of EB kids absolutely amaze me! Your Bella is so precious, I cannot imagine how difficult it must be to always have to "be on" so no one hurts her.<br /><br />I'm so glad Ali can be in preschool and have some normalcy in her life. She is one cute little girl and I bet she keeps you on your toes! <br /><br />I am praying for Bella's cells to grow, that she recovers enough to get off the vent and back on 5D. I'm also praying that the medical team involved with her will learn more about EB and understand that her parents are the best ones for information.<br /><br />Praying from Waterford, MI<br />Kim MAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-72795264400799368092010-07-07T04:58:17.404-07:002010-07-07T04:58:17.404-07:00I thought this hospital was going to be a little b...I thought this hospital was going to be a little better, EB aware wise anyway. I guess I was wrong. Good thing you are there to keep an eye on beautiful Bella. Hope she continues to rest and hopefully you can get some rest too. Praying that those cells grow. Grow Cells Grow!!! Extra prayers and hugs coming your way. Love you guys. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-7448400558396830362010-07-07T04:35:51.243-07:002010-07-07T04:35:51.243-07:00My inner control freak wants to donate a box of 9 ...My inner control freak wants to donate a box of 9 volt batteries and a label maker to the ICU so everyone knows how to fix the scales on the cribs! <br />I'm sad to hear that Bella had a tough day. I hope you can rest today/tonight.<br />NatashaAnonymousnoreply@blogger.com