tag:blogger.com,1999:blog-257209375427878024.post3774820546139630035..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: August 13: Day +42Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-257209375427878024.post-36612381090791237972010-08-14T22:25:56.833-07:002010-08-14T22:25:56.833-07:00Hi! This is my first time commenting on your blog...Hi! This is my first time commenting on your blog! I check it several times a day though! I hadn't ever heard of EB until I stumbled across Jonah's blog over a year ago. All of these kids have been pulling at my heartstrings so hard. My heart just breaks into a million pieces for them and their families. I appriciate you (and the rest of the EB parents) who allow me to follow your sweet kiddos. I am in constant prayer for all of you and think about your kids and your families so many times every day. Bella has an amazing spirit and so do you! You have such a way with words. I wish there was more I could do to help. I am in Colorado, I am am going to be contacting the RMH to see how I can help them out. I also think there is an EB clinic here at The Children's Hospital, so I may contact them and see what I can do. Thank you again for sharing your sweet family with us strangers, as a Mom, I am so touched!<br /><br />Kristi G.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-63757647941363292692010-08-14T13:23:00.597-07:002010-08-14T13:23:00.597-07:00What a bummer about her fluid issue. There's n...What a bummer about her fluid issue. There's no happy medium with these kids, is there? I'm excited for Monday and Bella's extubation!! Woo-hoo! They just need to get her off the dang prisma so she can go back to 5D! Hopefully, we'll all be celebrating over there next week...TOGETHER! See you guys around the halls! Love, JennJennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-70747419173473864402010-08-14T12:44:13.117-07:002010-08-14T12:44:13.117-07:00I did a big shout-out on my blog to all the EB kid...I did a big shout-out on my blog to all the EB kids (Bella, Daylon, Tripp, Elle, Jonah) I follow and will share a link on Fbk!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-9054887875791009162010-08-14T08:03:06.056-07:002010-08-14T08:03:06.056-07:00Thanks for sharing the links! I am glad to see th...Thanks for sharing the links! I am glad to see the awareness spreading. I am hopeful!Cherylhttps://www.blogger.com/profile/05135456666823026419noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-5054534322501961142010-08-14T05:59:02.202-07:002010-08-14T05:59:02.202-07:00Rest up today Bella!Rest up today Bella!Amyhttps://www.blogger.com/profile/14785790930155861523noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-5835948303140907042010-08-14T00:19:17.698-07:002010-08-14T00:19:17.698-07:00These kids seem to have amazing turn-arounds...lik...These kids seem to have amazing turn-arounds...like you said, she is tired. Great seeing you all tonight.Beckyhttps://www.blogger.com/profile/16057251732943794307noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-69474161438565216672010-08-13T23:32:52.756-07:002010-08-13T23:32:52.756-07:00Tim, I've been placing comments on as many as ...Tim, I've been placing comments on as many as these articles as possible to direct people to this blog and to Daylon's. Maybe others can do the same. I'm hoping you can get a new round of followers out of it. Have a great time tomorrow with Miss Ali, sounds like a great, much deserved getaway. Love to all, Jen.Jenniferhttps://www.blogger.com/profile/12049780462015283438noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-202951481574821552010-08-13T22:37:17.470-07:002010-08-13T22:37:17.470-07:00Stay strong Bella! Man, what a fighter! I know she...Stay strong Bella! Man, what a fighter! I know she will get thru this little bump in the road to her recovery. She's gotten thru much worse. She's super Bella! Lots if prayers on the way. Have fun with Ali and post lots of pics. <br /><br />Take Care,<br />Amber McLaughlin,CAThe McLaughlinshttps://www.blogger.com/profile/13131393449323517990noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-20068147390631758552010-08-13T21:27:12.954-07:002010-08-13T21:27:12.954-07:00Hang in there little one, we're still here, st...Hang in there little one, we're still here, still praying, still sending endless love and blessings. Hang in there Dad, its not over till little Miss Bella says it is, and we're here until she does..:) have a wonderful time with Ali, looking forward to more positive news...slow and steady...blessings to all, and especially Bella, beautiful baby girl, who will be well!donnahttps://www.blogger.com/profile/17415671160713121008noreply@blogger.com