tag:blogger.com,1999:blog-257209375427878024.post477179544590992343..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: July 11: Day +9Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-257209375427878024.post-44088904630891626712010-07-12T13:10:00.643-07:002010-07-12T13:10:00.643-07:00Grow cells, GROW. We are filling your space with p...Grow cells, GROW. We are filling your space with prayers, strength and love and sending special kidney juju that the universe owes us. <br /><br />(p.s. Just love the socks of the day.)Lynne, Bob, Jack and Bennoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-26378606955781719782010-07-12T12:21:22.313-07:002010-07-12T12:21:22.313-07:00Hey Mate,
"Such power there is in clear-eyed...Hey Mate,<br /><br />"Such power there is in clear-eyed self-restraint" -James Russell Lowell<br /><br />But then...<br /><br />"...Float like a butterfly, sting like a bee..." -Mohammed Ali<br /><br />And always,<br /><br />"Walk softly, but carry a BIG STICK" - T. R.<br /><br />And finaly,<br /><br />"If you can't push 'em, PULL 'EM HARD!" - Besquared<br /><br />Now, go get 'em.<br /><br />Love and Prayers,Unknownhttps://www.blogger.com/profile/13130356019668804122noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-8443678370927351932010-07-12T09:14:49.256-07:002010-07-12T09:14:49.256-07:00Hi, sorry I havn't commented on your posts for...Hi, sorry I havn't commented on your posts for the last week or so. I say sorry, because I want to, to let you know I'm praying for sweet Bella. But I check your blog on my phone (busy, busy...) and it's not easy to post a comment, it ends up getting deleted when I try to post it.<br /><br />I was so sad to see that Bella had to be put on the ventilator, but thank God she's not in pain. She will not remember any of this, that is such a blessing. I will pray tonight for her CSA count to be normal, I really hope the doctors get it under control.<br /><br />On the other hand, I'm happy to hear Bella is growing some of Ali's cells. How great is that?! Long may it continue!Beckyhttps://www.blogger.com/profile/16839521801604195635noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-59353216468243170752010-07-12T09:04:41.540-07:002010-07-12T09:04:41.540-07:00Like everyone else here, I was THRILLED (!) to rea...Like everyone else here, I was THRILLED (!) to read about the cell growth. Could we ask for anything more? In a word - YES! And hopefully the outcome of your "conversation" with the assigned staff people will yield some very positive results. Like Sara, I'd LOVE to have an ear to the door while you make your case today. Can't wait to read about it, along with the numbers that show just how well la bella Bella is doing. So...my prayer for you today is that everyone has their "listening ears" on and that they, too, will become more assertive in their care of your precious girl.Jack and Molly's Nananoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-28931126243905324332010-07-12T06:31:18.030-07:002010-07-12T06:31:18.030-07:00Go get 'em, Dad! You are Bella's voice an...Go get 'em, Dad! You are Bella's voice and her strongest advocate. Praying for positive results.<br /><br />Susan<br />A friend in NCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-78762289708924553682010-07-12T04:18:05.685-07:002010-07-12T04:18:05.685-07:00Love the good news but boy oh boy, what do you hav...Love the good news but boy oh boy, what do you have to do for the drs and nurses to GET IT. I know that EB is super rare but please listen to the parents of these EB children. They are so special and you NEED to be SO GENTLE with them. THEY ARE NOT LIKE ALL THE OTHER PATIENTS. They have SPECIAL NEEDS. I sure hope you get through to them today. Stand firm and through a big snitty fit if you have to. Meg did it a few times and it seemed to work for a little while anyway. <br /> Good luck with your talk today. God Bless You. Love and hugs coming your way. Give Bella a kiss for me. Thanks Tim for the updates. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-56969952974751584832010-07-12T03:00:35.206-07:002010-07-12T03:00:35.206-07:00Great good news! Just keep them growing, Bella!
I...Great good news! Just keep them growing, Bella!<br /><br />I am sure you will pass your message! Sometimes, making a scene is the only way to be heard!<br /><br />'Hope to read more good news tomorrow.<br /><br />Carla and MatildeCarla and Matildenoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-87307858794673000902010-07-12T00:14:01.237-07:002010-07-12T00:14:01.237-07:00I hope your next update is about how making a scen...I hope your next update is about how making a scene resulted in a better heart rate and happy kidneys.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-91924547706860172342010-07-11T22:24:16.766-07:002010-07-11T22:24:16.766-07:00I am sitting here shaking my head. I don't kn...I am sitting here shaking my head. I don't know what is up with the docs lately, but it seems like nothing has gone smoothly in BMT for about the last 3 weeks. I have been feeling as frustrated as you felt. I kept on thinking well maybe they are just concentrating their energies on the kids that really need it right now and my daughter is being forgotten because overall she is doing well. It is heartbreaking to hear about what Bella and Quincy have experienced the last few days. Praying hard for God to keep her safe until the docs get their act together.<br /><br />Marsha (and Elizabeth)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-36705072922986571982010-07-11T22:09:31.799-07:002010-07-11T22:09:31.799-07:00Storming the Heavens for all. go gently Tim.Storming the Heavens for all. go gently Tim.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-56633654972214725352010-07-11T21:05:57.321-07:002010-07-11T21:05:57.321-07:00We are here...we are still praying...dishing out s...We are here...we are still praying...dishing out some heavy duty prayers...<br />God fill the room...<br />Kathryn <br />KC, MOKathrynhttps://www.blogger.com/profile/13393971874722033232noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-82184695221538161252010-07-11T20:22:52.057-07:002010-07-11T20:22:52.057-07:00I was so hoping to see an update before bed tonigh...I was so hoping to see an update before bed tonight...even a brief one is more than ok. I cant begin to tell you how much Bella has touched my heart and have to check in daily for an update. I love the good news. I hate that you have to confront the drs in the morning...you shouldnt have too (shouldnt be necessary). But I am so glad you are Bella's daddy and you wont back down from the fight. My daughter Clara (she has NEHI and had a cold gone bad) was back in the hospital just for a couple of days and that is so hard...I cant imagine weeks of being at the hospital. Those two days were spent thinking of Bella and your family...although she pops up into my thoughts frequently during the day and I send quick prayers. To tell you the truth I wasnt much into praying until your story. Now a day doesnt go by without those prayers.<br /><br />Denise-WIDenisehttps://www.blogger.com/profile/13295097495507100702noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-69221018490528609382010-07-11T20:13:04.158-07:002010-07-11T20:13:04.158-07:00You tell 'em, Tim :)
(Oh, to be a fly on the w...You tell 'em, Tim :)<br />(Oh, to be a fly on the wall! Can you wear a hidden camera?)<br /><br />I do LOVE the good news, though!<br /><br />And life is good with lots of ponies...Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.com