tag:blogger.com,1999:blog-257209375427878024.post7475392206511056287..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: Look for the Hidden BlessingBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-257209375427878024.post-1575364458953981492009-09-04T08:13:30.659-07:002009-09-04T08:13:30.659-07:00I just found your site through another, and wanted...I just found your site through another, and wanted to say hi. We go to CHOC also, not for EB but for other issues. :)ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-5693541403737285442009-09-03T12:03:38.272-07:002009-09-03T12:03:38.272-07:00Hi Anabella's family,
My name is Patrice, and...Hi Anabella's family,<br /><br />My name is Patrice, and I have a little boy (born 2-27) with Junctional EB (we think non-Herlitz). I just found Anabella's site today, but will be praying for and watching her journey. I hope your girls are a match. They have been having so much success. They are now opening up the trials to JEB and without sibling matches, but that's much more risky, I think. So for now, we just hope and pray. <br /><br />You can follow Jonah's story at:<br />patriceandmattwilliams.blogspot.com<br /><br />Aslan is on the move!!!<br /><br />PatricePatricehttps://www.blogger.com/profile/06865294910862077812noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-60047169561313910322009-09-01T22:29:07.637-07:002009-09-01T22:29:07.637-07:00Hey Tim, Ang, Ali and Bella,
Just wanted to let y...Hey Tim, Ang, Ali and Bella,<br /><br />Just wanted to let you know that even some of us avowed atheists are wishing and intending that Bella's life continues to be extraordinary and that her health issues diminish with expediency. Love you guys! Scott JordanChubascohttps://www.blogger.com/profile/10315122446913899608noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-24030158578376022972009-08-29T12:26:05.069-07:002009-08-29T12:26:05.069-07:00From Care Pages Site:
Posted 49 minutes ago
by m...From Care Pages Site:<br /><br /><br />Posted 49 minutes ago<br />by mary amen<br /><br />I am so very often inspired by your writing and can't wait for the book! God bless you all and have agreat weekend,<br />Mary<br />Posted 2 hours ago<br />by Robin Setto<br /><br />Dear Tim, Angelique, Ali and Bella,<br />POSITIVE, positive, positive... you are amazing! So as the smoke clears from "ALL of this" I wonder what the overall ultimate "good juice" will end up being... it will be interesting or are we already seeing it... ;)<br />Our intense prayers continue.<br />-Michael and Robin Setto<br />Posted 4 hours ago<br />by Albert Alva<br /><br />Thanks for another update of positive energy and blessings. Our positive energy is always out there for Bella to have a better day. I have Chapman jazz auditions this Sunday, and classes start on Monday. It's always exciting for me to see the fresh, enthusiastic faces, anxious to learn about playing and singing jazz. You always remind me that my blessings are clearly right in front of me, so I just let them in. Peace brother!<br />Posted 5 hours ago<br />by Mimi Ojukwu<br /><br />You are all still in my prayers and I am praying especially that Bella is a good candidate for BMT. Glad you weren't too badly hurt in the accident.<br />Posted 8 hours ago<br />by Sheila Marchetta<br /><br />So sad to hear about Bella's newest blisters. Hoping and praying that the BMT is a possibility.<br />Wow!! Relieved that you weren't seriously injured in the accident. Peter says it very well. I absoluely agree with him. Your positive attitude of faith are amazing!<br />Love ya,<br />Mom<br />Posted 11 hours ago<br />by Peter Smith<br /><br />Tim, you're amazing. A study in positive attitude - and you follow through with it too. Thanks for the time you put into writing this when you have so much on your plate. Love to you all, Peter.Bella's Blessingshttps://www.blogger.com/profile/09372603162401786615noreply@blogger.com