tag:blogger.com,1999:blog-257209375427878024.post7953142665845618890..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: October 11: Day +101 Part TwoBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger369125tag:blogger.com,1999:blog-257209375427878024.post-89576946404558710392012-05-07T04:51:16.965-07:002012-05-07T04:51:16.965-07:00Thank you for sharing your beautiful family with u...Thank you for sharing your beautiful family with us. Bella has touched us all in so many ways. I am sure that Bella is dancing in streets of gold today in perfect health and happiness for that I am grateful. We will continue to pray for your family!!!animalluverhttps://www.blogger.com/profile/00807523690176913027noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-81283909087690020322012-04-19T13:21:48.415-07:002012-04-19T13:21:48.415-07:00I found Bella's blog through Jonah's, thro...I found Bella's blog through Jonah's, through Tripp's and have followed Bella's blog for a while. While I have known Bella is in Heaven, I had not read your posts from the days surrounding her passing. I read them recently and have had a heavy heart the past few days. I have kept Bella and your family in my thoughts and prayers more often recently, but have still had a heavy heart. Yesterday while on my daily run, I sat down to stretch and a butterfly landed near me for a few seconds. I dont know what came over me, but I said "say Hi to Bella for me", and it flew away. My heart isn't so heavy anymore. I will continue to keep your family and Bella in my prayers. Just had to share that butterfly story with you. :)Amandanoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-18908212970385569332012-01-05T11:51:21.361-08:002012-01-05T11:51:21.361-08:00May your sweet little angel rest in peace <3 I ...May your sweet little angel rest in peace <3 I have followed your blog for a while and you 2 are so strong and have soooo much love to give, you feel it in every word! Please know that the EB awareness is spreading and fast. 6 month ago I had not heard about this disorder and now I read about it everywhere. I donated to debra and just wanted you to know that Bella was a true hero and will always be remembered as one! Lot's of love from Malin and princess Haley is Belgium.Malinhttps://www.blogger.com/profile/08950821696746543759noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-76752229974033236912010-10-27T09:39:35.653-07:002010-10-27T09:39:35.653-07:00I have been out of touch for a few weeks, lost in ...I have been out of touch for a few weeks, lost in my own life and "stuff". I know Angelique from when we used to work together in California and just connected with her very recently and learned of Bella's story. <br /><br />My heart broke today reading this but what a beautiful, beautiful way to love your daughter into heaven and into the arms of Jesus. What a blessing! Death is swallowed up in victory! <br /><br />My prayers are with you.Maryhttps://www.blogger.com/profile/11406202897505246968noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-34978963215500157612010-10-20T14:35:35.692-07:002010-10-20T14:35:35.692-07:00First I want to say I'm so sorry for your loss...First I want to say I'm so sorry for your loss. This is my first time visiting your blog. {I actually found you through Leah's blog.}<br /><br />I wanted to share a heart warming moment with you.<br /><br />I was sitting here reading your daughter's story and my daughter Emily, who's 4 and is a special needs child, and who also never really bothers much with things I'm doing on the computer..... saw your daughter's picture and leaned over to my computer screen and kissed her.<br /><br />I just wanted you to know that. <br /><br />There is something special about my daughter. It's hard to explain. It's a connection she has with things that we could never imagine knowing. Gosh, I hope that makes sense. So Emily kissing the screen.... was very heartwarming and I hope it gives you some peace to know that.<br /><br />With love,<br />Christina & EmilyTinahttps://www.blogger.com/profile/13376654976945397291noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-62560114569303495872010-10-14T20:17:59.143-07:002010-10-14T20:17:59.143-07:00Oh, I am so sorry. I follow Daylon's blog, as ...Oh, I am so sorry. I follow Daylon's blog, as I am from the same town and they posted your loss on their blog. I am sitting here crying over my computer at your story. Many prayers for your sweet baby girl and your family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-41028516887265342362010-10-14T12:46:43.439-07:002010-10-14T12:46:43.439-07:00I found this poem today, thought I'd share:
(a...I found this poem today, thought I'd share:<br />(attributed to Mary Frye)<br /><br />Do not stand at my grave and weep.<br />I am not there. I do not sleep.<br />I am a thousand winds that blow.<br />I am the diamond glints on snow.<br />I am the sun on ripened grain.<br />I am the gentle autumn rain.<br />When you wake in the morning rush<br />I am the swift uplifting rush<br />Of quiet birds in circled flight.<br />I am the stars that shine at night. <br />Do not stand at my grave and cry.<br />I am not there. I did not die.<br />Do not think of me as gone.<br />I'm with you still - in each new dawn.<br /><br />(I'm sending you a card but thought I'll put it here as well in case the card doesn't reach you).<br /><br />Thank you so much for sharing Bella's story through your blog - although I didn't know her in person, I will never forget her.<br /><br />Thinking of you all at this sad time.<br /><br />Martina, UKAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-29781320504769906992010-10-13T17:08:10.135-07:002010-10-13T17:08:10.135-07:00What more can I say Tim and Angelique"? I re...What more can I say Tim and Angelique"? I read on and on the comments that have come in. I think and think for something else to make this an easier time for you. I guess love and compassion are the greatest expressions there are. I feel so empty and then again I feel so filled with Bella's life and influence in this tired old world. What she has done through you Tim, her "mouthpiece" for goodness in the world is magnificent. I have a feeling Bella will be a big part of your future work. How wonderful it is that you felt free to share with us all. Certainly a blessing for me. Yes, the world is a better place because of Bella.<br /><br />After I opened the blog and saw her photo and dates, my heart stopped too. The next e-mail I opened was a slide presentation of the fountains in Dubai with Sarah Brightman and Helmut Gotti singing "Time to say Good Bye." I wept!! But, yes, Bella fulfilled her mission on earth and God knew it was time to free her from the long struggle.<br /><br />Now, I worry about You both, Tim and Angelique. I know that heavy stress takes a toll on our bodies. What you have going for you is the ability to talk it all out so it doesn't cause harm by holding it in,<br /><br />The heart plaque with your hands is so special and the broken part says it all. You can always touch each other.<br /><br />A job well done!!!!!!!!!!!!!!!! Love, GreenieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-30588932955246263562010-10-13T16:31:38.582-07:002010-10-13T16:31:38.582-07:00I'm holding space for you all, and honoring yo...I'm holding space for you all, and honoring you as you go through this part of your journey. <br /><br />Your family, Bella's story, and the courage you ALL have shown is a lesson to all...<br /><br />May you continue to find the most gentle path to healing...<br />Carree & Family, Phoenix, AZCarreenoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-55701584317067962652010-10-13T11:12:08.819-07:002010-10-13T11:12:08.819-07:00I'm so sorry for your loss but so happy that B...I'm so sorry for your loss but so happy that Bella no longer has to endure the fight that is EB. She fought so hard for so long. I know she will always be missed and loved but she is now being taken care of in heaven. So glad that Bella can now run around and play with all the other children in heaven without worrying about a blister or scrape. <br /><br />Blessings and Hugs from NYSarahttps://www.blogger.com/profile/08499762320873780589noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-20524711640274304022010-10-13T09:56:51.446-07:002010-10-13T09:56:51.446-07:00I truly hope my last day of life is as wonderful a...I truly hope my last day of life is as wonderful as your baby girls. You story is amazing and your words are so powerful. I cant really see the screen right now because I am crying my head off. My dogs are worried :) May all the comfort and peace the world has to offer find you and your family at this time.COME ON BABYhttps://www.blogger.com/profile/13508080594311805199noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-28606910595558829262010-10-13T08:40:36.248-07:002010-10-13T08:40:36.248-07:00Dear Tim, Ang, Ali, and Bella,
I am so gratef...Dear Tim, Ang, Ali, and Bella,<br /> I am so grateful God gave you to each other. What a wonderful gift you were as a family to Bella, and how transformative her life has been for you. I share in your tears and hold you in my prayers. I dreamt about you all last night. I was holding my grandmother's hand last month as she took her last breath--the beauty of seeing one life end and another begin, all in an instant, is incomprehensible. I am so grateful, with you, for the gift of each day you had together, and the gift of this last day with Bella here on earth. I love you all.<br /><br />ChelseaChelsea Davishttps://www.blogger.com/profile/01825840598100242249noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-16098781718155861912010-10-13T08:15:08.528-07:002010-10-13T08:15:08.528-07:00It is so nice that you allowed Ali to say goodbye ...It is so nice that you allowed Ali to say goodbye to her sister in such a positive manner. The molds and painting and stickers, they will all be things that she can fondly look back upon. I'm so sad that Bella didn't make it through this, but it is so nice that she doesn't have to be in pain anymore. And hopefully they will learn a lot from Bella when they are treating new patients.<br /><br />Love Bonnie in ArizonaBonniehttps://www.blogger.com/profile/13534010150487643376noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-50882295231969384052010-10-13T06:45:03.477-07:002010-10-13T06:45:03.477-07:00MY HEART BREAKS FOR YOU AND MY PRAYERS ARE FOR YOU...MY HEART BREAKS FOR YOU AND MY PRAYERS ARE FOR YOUR CONTINUING STRENGTH THROUGH FAITH. WE KNOW THAT ALONG WITH OUR EB ANGEL "LEAH" ALL THE BEAUTIFUL BUTTERFLY ANGELS ARE WITH BELLA, HOLDING HANDS, EB FREE AND WITH OUR LORD. IN THE WARM LIGHT OF HIS LOVE THEY LOOK DOWN ON US AND SAY "I LOVE YOU". MY OUR GOD BLESS YOU AND KEEP YOU. LEAH'S POP-POPRON GEHRINGnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-4086556188295648772010-10-13T06:30:14.358-07:002010-10-13T06:30:14.358-07:00I am very sorry for your loss. I have a 2 years ol...I am very sorry for your loss. I have a 2 years old and I can barely imagine the pain you're going through. I will pray for Bella and will not forget her.Audreynoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-55053581606128511512010-10-13T03:39:11.911-07:002010-10-13T03:39:11.911-07:00Bella is a brave child, you are a brave family who...Bella is a brave child, you are a brave family who! We will always be thankful for the journey you let us follow. Our daugter Elly has EB and I wish and try to be as brave as you are, and as strong. Bella is an angel, the most wonderful angel..<br /><br />Love <br /><br />Emelie from Sweden.Emeliehttps://www.blogger.com/profile/13771151519850806281noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-37357293217428439792010-10-13T02:38:39.609-07:002010-10-13T02:38:39.609-07:00I am so sorry for all of you. What a great family...I am so sorry for all of you. What a great family you have. I will be praying for your healing and comfort. You are the meaning of determination when it came to Bella and she was so lucky to have such a great family. Your friend from the UP of Michigan.Vickihttps://www.blogger.com/profile/15167695616883335018noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-79207901921438968032010-10-13T02:23:22.814-07:002010-10-13T02:23:22.814-07:00I am sorry to hear about your loss...there are no ...I am sorry to hear about your loss...there are no words to comfort you at this point but I am so happy to have been able to "meet" you all and know Bella. She was so precious and I am glad to know she is free from all pain and saddness to live in eternal bliss. She will comfort you.<br /><br />Love, Jeni (Madrid)Jennifer Mullenixhttp://www.gonzalomullenixnetwork.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-78252158590513235992010-10-13T01:59:15.989-07:002010-10-13T01:59:15.989-07:00I followed your blog for a few months now. Everyti...I followed your blog for a few months now. Everytime I was about to right, I gave up because I did not know what to right. And I am so sorry for writing only now. Nevertheless I must say to you how an amazing family you are, I wish you all the strength that you can get.<br /><br />Little Bella, if somehow, you can read this, take your butterfly wings and fly free.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-75754170970945281662010-10-13T00:49:13.285-07:002010-10-13T00:49:13.285-07:00I have been following you through your hospital jo...I have been following you through your hospital journey and this morning my heart broke. What a beautiful little girl. May you find peace and comfort knowing that she is in a good place nad that she is with a loving father in heaven. She is free from pain and will be awaiting you one day. Know that you are in my prayers and will be for the near future! KristinKrus Familyhttps://www.blogger.com/profile/09952714385953160393noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-49365351292185063452010-10-12T23:42:31.161-07:002010-10-12T23:42:31.161-07:00Angelique and family
I admire your courage, faith,...Angelique and family<br />I admire your courage, faith, and strength more than words can say. Your courage as parents is immeasurable. Your Sweet Bella has a future in heaven free from EB. Her work here has done so very much. Your Bella was a teacher. She taught life lessons, EB lessons, and opened our eyes to participating in making a difference in life. Thank you for sharing your daughters fight and your family. Hugs to the most courageous Mother I know (and to a father with just as much fight). <br />Fondly<br />CandiceHeadley Happeningshttps://www.blogger.com/profile/07010471410618286725noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-2765436558400206942010-10-12T23:14:48.246-07:002010-10-12T23:14:48.246-07:00Sweet baby Bella,fly with the Angels.Some people h...Sweet baby Bella,fly with the Angels.Some people have to live a very long to fulfill their purpose on earth.You, little one,have achieved so much in such a short time. You will be in my heart forever. Ali,maybe there will be times that you will feel that baby Bella was some amazing human being that you could never be like-well I want you always to know that Bella is just ordinary like all of us,but she was given an extra ordinary job to do.You too little one, have bought joy,sunshine,laughter and courage to all of us who have been reading your Daddy's blog all this time. You and Bella will be loved by us all for ever and ever. Love and prayers for all at this saddest of all timesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-13690619210312860662010-10-12T23:09:13.671-07:002010-10-12T23:09:13.671-07:00Dear Tim and Family,
It's been a sad day and n...Dear Tim and Family,<br />It's been a sad day and no one around me knows about or knows Bella. Do you get that feeling that part of the world needs to be told how sad it is without her?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-2169877743133884702010-10-12T23:02:35.492-07:002010-10-12T23:02:35.492-07:00I am new to your blog (via Jonah's blog), and ...I am new to your blog (via Jonah's blog), and I just wanted to say that I am so very sorry for the loss of your sweet baby girl. Thank you for sharing her story with us. I will be praying for God's comfort and peace for your family as you grieve your loss. I rejoice that she is now in heaven and free of all pain.Miss Khttps://www.blogger.com/profile/05884118264368366806noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-82711925483661700662010-10-12T22:31:07.963-07:002010-10-12T22:31:07.963-07:00oh dear dear bella
my first morning without you.....oh dear dear bella<br /><br />my first morning without you...i miss you dearly.<br /><br />tim, angelique, ali. you are loved, and i will keep on sending my love in your direction, and won't give up on you or any other EB baby or EB parent in need. <br /><br />I am no god person, but today, I say God bless you all.<br /><br />juana from the island of mallorca, spainjardinera lindahttps://www.blogger.com/profile/16932704231886236979noreply@blogger.com