tag:blogger.com,1999:blog-257209375427878024.post8311121921013310793..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: November 25: Worn and Torn...Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-257209375427878024.post-43724659588194602782013-01-14T05:36:05.003-08:002013-01-14T05:36:05.003-08:00Happy New Year to you and your beautiful family. I...Happy New Year to you and your beautiful family. It was so good to have you back and to hear of all the news about EB. I know sweet Bella is so proud of her family...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-33880241657982660142013-01-08T15:32:44.607-08:002013-01-08T15:32:44.607-08:00hope all is well, missing your updates. you are an...hope all is well, missing your updates. you are an amazing writer.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-12500743420243129222013-01-08T12:02:00.279-08:002013-01-08T12:02:00.279-08:00Happy New Year to you and your family!
I miss your...Happy New Year to you and your family!<br />I miss your post ... Hope you are all well.<br />Love,<br />MAriana,UKAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-78037243641084376412013-01-07T21:15:08.053-08:002013-01-07T21:15:08.053-08:00Dear All,
Hoping all is well. I sent a holiday me...Dear All,<br /><br />Hoping all is well. I sent a holiday message recently, but heard no updates from you.<br /><br />Happy New Year to you all, sending you love and hoping to hear from you soon,<br /><br />Fondly, always,<br /><br />JaneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-18348233795551540582013-01-03T18:22:45.659-08:002013-01-03T18:22:45.659-08:00Tim, Ang, Ali, and Julian,
I miss your blogging. ...Tim, Ang, Ali, and Julian,<br />I miss your blogging. I hope that Christmas was blessed with family, health and friends. May 2013 be filled with all your hopes and dreams. I pray daily for a cure for EB, for Bella, for parents like you who have gone to hell and back for their child. Fondly from ND, HollyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-31539196771369713622013-01-01T20:06:44.172-08:002013-01-01T20:06:44.172-08:00Happy New Year to you all, dear Ringgolds!
I am s...Happy New Year to you all, dear Ringgolds!<br /><br />I am sitting on the edge of a skiing hill in the snow, enjoying time with my family and hoping that all moves on well with YOUR family. Clear skies, beautiful trees shaped and weighed down with snow, kind souls who tolerate my apology for skiing and give me a wide, wide berth, AND.... that sense of hope and freshness and optimism and 'startingover' (if you see what I mean) that comes with a new year. <br /><br />Sending you all my best of best wishes for 2013. Love to all five of you,<br /><br />Jane,<br /><br />From my borrowed snowy rooftop, fondly always.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-86117706696561840342013-01-01T00:53:44.474-08:002013-01-01T00:53:44.474-08:00Why have you not updated for so long? Hope that al...Why have you not updated for so long? Hope that all is well with you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-92132486269261446622012-12-04T13:29:53.506-08:002012-12-04T13:29:53.506-08:00It was not long ago that I first heard of EB, watc...It was not long ago that I first heard of EB, watching a TV programme, and since then, from one blog to another, I somehow got to "know" a small part of butterfly children. I remember the first time I read about Bella, and it was so different. There is something really special about her and I kept thinking about her, her story, could it have been be different, could it be one of happy ending... some questions that I am sure have bothered your mind too thousands of times even though you said that once you knew about the medical trial, you knew your family would go for it. <br /><br />I don't know what could be that special thing about Bella, may be it is that sparkle of life in her eyes, looking at her photos and videos, one doesn't get to see her ilness but her vividness, and so, I just wanted to tell you that your sweet baby girl is loved and missed even by a complete stranger who is on the other side of the globe (Eastern Europe).<br /><br />I hope you will keep posting updates, keeping this blog alive somehow keeps the memory of Bella alive. Hugs to you and your family (my baby girl is probably more or less the same age as Julian :))Rumihttps://www.blogger.com/profile/13793069380362026901noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-80007510781144017472012-12-02T21:06:35.338-08:002012-12-02T21:06:35.338-08:00You make the hard times sublime, and you make the ...You make the hard times sublime, and you make the times of remembrance a celebration, no matter how tough they are for you to process. Ringgolds, you are amazing. I can't begin to imagine the intensity of the process you travelled through at the concert, Tim, but I know it was another piece of the puzzle for you. I am mixing my metaphors, but what I think I am trying to say is that the path away from Bella's passing is perhaps to be marked with unforeseen and unexpected gestures, your performance at the concert being one of them. I honour those moments of symbolism that mark the path you forge to remember her.<br /><br />She is ever beautiful, as are you and Ang.<br /><br />Ali and Julian are the most glorious lovely young people.<br /><br />What a family,<br /><br />Love to the five of you,<br /><br />From my wintry rooftops,<br /><br />Fondly,<br /><br />Jane<br />x Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-87986482492671304762012-11-27T21:27:21.673-08:002012-11-27T21:27:21.673-08:00So happy to hear the gammet of emotions you were a...So happy to hear the gammet of emotions you were able to experience in doing such wonderful work! You & Ang are remarkable people. I'm honored to kno your story & have th opportunity to, in some small way, be a part of that story as it continues to unfold . Love from Louisiana, RikkiMrsRikkiLynnhttps://www.blogger.com/profile/12136258343768988383noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-14005391829539721392012-11-27T05:58:55.559-08:002012-11-27T05:58:55.559-08:00Wish that concert had been local :/
And
Julian'...Wish that concert had been local :/<br />And<br />Julian's Yoda is killing me!!!!!! Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-28898965744067484392012-11-27T01:33:33.703-08:002012-11-27T01:33:33.703-08:00Happy Thanksgiving to all of you. Many of us have...Happy Thanksgiving to all of you. Many of us have been blessed this past year. God blessed us with a beautiful little grandaughter. <br />I am seeing more and more kids with EB. My heart breaks, because I remember all that Bella went thru, and what these beautiful babies are having to endue. I pray a cure will be found soon.<br />carlahttps://www.blogger.com/profile/03220167003874256410noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-13274066148965623922012-11-27T01:33:02.809-08:002012-11-27T01:33:02.809-08:00I am so so glad you posted! I was really begining ...I am so so glad you posted! I was really begining to worry about you guys! What an awesome experience the concert must have been. Love Julian's picture. Ali is getting more beautiful with time! indeed you are one lucky man Tim, you have a wonderful family!<br />love<br />christiana, cyprusAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-28028869887390098592012-11-26T02:36:55.094-08:002012-11-26T02:36:55.094-08:00Congratulations on the concert!!! I'm sure Bel...Congratulations on the concert!!! I'm sure Bella is very proud of her parents.<br />Julian is so cute!Love,<br />Mariana,UKAnonymousnoreply@blogger.com