tag:blogger.com,1999:blog-257209375427878024.post9090831192245574424..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: May 6, 2012: The Challenge Grant is On!Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-257209375427878024.post-4342199178313678722012-05-08T05:11:26.026-07:002012-05-08T05:11:26.026-07:00Hey Tim,
This is exciting but umm, you do know tha...Hey Tim,<br />This is exciting but umm, you do know that Dr Tolar is not the first to discover Gene Therapy for EB. Stanford University has been researching these for a couple of years now and I think are starting trials pretty soon. My dermatologist has even mentioned to me there might be some trials starting here too :) <br /><br />I have recently done a trial which looks quite promising...not a cure but more of a treatment :) Not sure if I'm allowed to talk about it yet but will tell u when I can! <br /><br />Missing Bella! :( <br />Love NikkiNikki RDEBhttp://nikkablogger.designnerd.netnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-73879124482576139382012-05-07T09:26:04.289-07:002012-05-07T09:26:04.289-07:00Just donated! Thank you for posting this informati...Just donated! Thank you for posting this information; I love to help whenever I can and you make it so easy. I am also participating in the I Refuse campaign on FB...anything to help these sweet babies!!<br />I have never even met an EB child but I feel so connected to this cause because of you and Courtney. Thank you for all you do!<br />Have a great week Tim and Family!<br />Kelley from MOkpow2006https://www.blogger.com/profile/02124174795197227119noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-80852662293524989232012-05-07T01:55:45.377-07:002012-05-07T01:55:45.377-07:00I think it's great you're continuing to pr...I think it's great you're continuing to promote EB research even though there's no direct benefit to you. So many people only want to help the charities that involve them, but you're fighting for the other kids. Good for you!<br /><br />I thought I'd love to be a dolphin trainer until I found out how naughty they are!Marienoreply@blogger.com