tag:blogger.com,1999:blog-257209375427878024.post1101837321198548011..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: The Return from NYCBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-257209375427878024.post-80701660001144846802010-02-20T20:09:07.099-08:002010-02-20T20:09:07.099-08:00Oh thank goodness Silvia I thought I was the only ...Oh thank goodness Silvia I thought I was the only one!Marienoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-89733019300214856952010-02-11T17:01:52.192-08:002010-02-11T17:01:52.192-08:00Man... I have a really hard time understanding thi...Man... I have a really hard time understanding this the way it's written. Sigh.Silviahttps://www.blogger.com/profile/13249193954789303375noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-41200614385213665672010-02-11T09:15:07.113-08:002010-02-11T09:15:07.113-08:00Thank God Bella was born to the two of you. Futur...Thank God Bella was born to the two of you. Future EB babies and parents will draw strength, comfort, and healing form your journey thus far. May God lead you down the right path for Bella's healing. Every Tuesday morning around 6:20am there is a group of about 25 guys praying for all of you.Russell Jhttps://www.blogger.com/profile/17085523775185928778noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-21478387444588110712010-02-07T15:08:38.455-08:002010-02-07T15:08:38.455-08:00In tears reading this amazing post. Yay, Bella! Ya...In tears reading this amazing post. Yay, Bella! Yay, U of M! Yay!!!!Lynne, Bob, Jack and Benhttp://ceresresults.comnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-67695119066630314272010-02-06T20:58:03.821-08:002010-02-06T20:58:03.821-08:00What an amazing post. So creative, and heartfelt,...What an amazing post. So creative, and heartfelt, and informative. I hate doctors who don't have good bedside manner. I wonder why they are so secretive about their treatment? That would make me uncomfortable. It's great news that U of M was approved. I hope you can make a decision and that Bella is on the road to NEW SKIN soon!ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-1325904022634465052010-02-06T20:51:05.800-08:002010-02-06T20:51:05.800-08:00Beautiful entry Tim. Can't wait to hear you p...Beautiful entry Tim. Can't wait to hear you put it to music as well. Sending all my positive vibes your way to help with this important decision. You all have made fantastic decisions so far for Bella, you will make the best one for her, here too.Jenniferhttps://www.blogger.com/profile/12049780462015283438noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-42193583347392150042010-02-06T19:45:38.479-08:002010-02-06T19:45:38.479-08:00I laughed at your post...I had the same experience...I laughed at your post...I had the same experience with my son after we visited columbia to find out about that same study. I unexpectedly was asked to draw blood...three sticks...only a drop of blood ...and lots of screaming...I said..STOP..no more..we'll try again another time...we are set to visit minnesota shortly..we live in NY ...so minnesota seems miles away..while columbia is in our back door..I don't understand the secrecy of the two transplant patients done. It is one of our main troubles there..why don't they share information with us??? I know the transplant subjects are not from the united states and the second one at least barely speaks english and we were told by the team that neither family wishes to share their story....????? I wonder how minnesota will compare!!?? thanks for sharing your journey with us..email anytime...johnbeth91@aol.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-71476572621696037002010-02-06T19:17:17.239-08:002010-02-06T19:17:17.239-08:00Thanks for the update. I visit your website every ...Thanks for the update. I visit your website every day. May all EB kids find a cure God's speed, Ameen. Lots of Love to Bella.<br /><br />AshfaziaUnknownhttps://www.blogger.com/profile/06609042913137882326noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-1477460199313647972010-02-06T09:03:52.198-08:002010-02-06T09:03:52.198-08:00Hi Tim & Angelique,
This is another amazing su...Hi Tim & Angelique,<br />This is another amazing summary of your beautiful journey! Thank you for sharing! Your strength has brought you to places and people whom you were meant to meet for so many reasons. Your lives are rich with love and prayers. Hugs!<br />-Michael and Robin SettoUnknownhttps://www.blogger.com/profile/10364197241133622587noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-4411925376632158272010-02-06T08:51:13.108-08:002010-02-06T08:51:13.108-08:00Great rap, Tim. Whew! I feel like I was right ther...Great rap, Tim. Whew! I feel like I was right there with you the whole way! Amazing connection you made with the pizza family. Unreal, but even more than REAL. Thanks for the update. Bella is so blessed as are the rest of us ~ Love to you allAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-26738503575663972372010-02-06T08:16:05.235-08:002010-02-06T08:16:05.235-08:00i loved this so much...
bella is so lucky to have ...i loved this so much...<br />bella is so lucky to have you as parents.<br />this could be the children's version of her book!Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.com