tag:blogger.com,1999:blog-257209375427878024.post201522065537545907..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: Living with Epidermolysis Bullosa: the good and the badBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-257209375427878024.post-57376842183254668692011-12-21T08:54:32.839-08:002011-12-21T08:54:32.839-08:00Be blessed, from a fellow EB patient. I have the ...Be blessed, from a fellow EB patient. I have the mildest form. I am now trying hard to encourage others with the condition or that are just struggling with life's ups and downs....thank you for sharing your story!!! BE ENCOURAGED! www.revneyda.comNeyda ALbarranhttp://www.revneyda.comnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-43480699771870395552010-10-11T09:47:13.060-07:002010-10-11T09:47:13.060-07:00I have been following your blogs for the last 2 mo...I have been following your blogs for the last 2 months. I am a nurse in an NICU and we recently had a patient with EB. We were directed to your site to help us to understand the disease and parent's perspectives. You are not just any old parent however.... You have i depth knowledge of your daughter and are not shy about it, and that is the best kind of parent there is. Bella is blessed!!! She looks great!! I hope she continues on this path!! We are all praying for you and your family. Go Bella go!!!!!doranoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-68966557692398272322010-05-24T19:36:31.912-07:002010-05-24T19:36:31.912-07:00GReat new space for the girls, well done! Our tho...GReat new space for the girls, well done! Our thoughts and prayers continue for Bella and you guys. We love you!Doug Gleasonhttp://verizon.netnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-26234153820209964062010-05-22T13:03:03.948-07:002010-05-22T13:03:03.948-07:00SA_WEET!!! Looks like the place to be!SA_WEET!!! Looks like the place to be!Just Dianehttps://www.blogger.com/profile/08113624845197503655noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-69801586919800486322010-05-19T22:48:11.835-07:002010-05-19T22:48:11.835-07:00Hey Tim!
I'm so sorry to hear about Bella. If ...Hey Tim!<br />I'm so sorry to hear about Bella. If it's not one thing, it's another with EB. Our thoughts and prayers are with you all! See you soon!Jennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-86150282907343845862010-05-19T15:25:27.053-07:002010-05-19T15:25:27.053-07:00Hi Tim: I was reading the blog and when you wrote...Hi Tim: I was reading the blog and when you wrote that you had given Bella a message, right away I thought, Oh My God, isn't that going to cause some blistering. Thankfully you wrote that she didn't get any.<br /> God how I hate EB with all my being. Keeping up the prayers for Bella and all the other EB cuties. Hang in there guys, you are doing a wonderful job. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-33735163753388018052010-05-19T12:10:49.541-07:002010-05-19T12:10:49.541-07:00Ali's new living arrangements are SWEET :)
( ...Ali's new living arrangements are SWEET :)<br /><br />( and not "sweet" like little girl sweet, I mean "Sweet!!" as in, completely awesome!)Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.com