tag:blogger.com,1999:blog-257209375427878024.post2266528255038803246..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: June 28: Day -4Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-257209375427878024.post-50892303935850926912010-06-29T20:15:57.821-07:002010-06-29T20:15:57.821-07:00Praying for your beautiful Bella and your family. ...Praying for your beautiful Bella and your family. <br /><br />DeniseAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-68015808495217171202010-06-29T19:37:43.609-07:002010-06-29T19:37:43.609-07:00Sleep well beautiful Bella :)Sleep well beautiful Bella :)Amihttps://www.blogger.com/profile/10934518234814604819noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-5081519530061294032010-06-29T19:28:57.155-07:002010-06-29T19:28:57.155-07:00Many prayers for healing sleep for Bella...and you...Many prayers for healing sleep for Bella...and you guys too!Doug Gleasonhttp://verizon.netnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-10708987284211969592010-06-29T15:51:07.344-07:002010-06-29T15:51:07.344-07:00Prayers for sweet Bella and her wonderful family!
...Prayers for sweet Bella and her wonderful family!<br /><br />Susan<br />A friend in NCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-25936420349798198172010-06-29T14:00:23.803-07:002010-06-29T14:00:23.803-07:00I am praying for your sweet Bella and you guys. I...I am praying for your sweet Bella and you guys. It is amazing that you already know Daylon and his family and you are there together! God is good, all the time. All the time, God is good.<br /><br />I can see from the outside looking in that families with EB are truly family to each other. That is wonderful. <br /><br />I'll continue to pray for your sweet Bella, Dr Wagner/Tolar and the medical team as they work with you to help Bella live a better life with less pain and misery.Kim Mhttps://www.blogger.com/profile/08352489657428563463noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-8198116480836672012010-06-29T11:47:44.954-07:002010-06-29T11:47:44.954-07:00I hope that Bella had a peaceful night. I say a pr...I hope that Bella had a peaceful night. I say a prayer for her and all of the children with EB, whenever I think of my EB Angel Granddaughter Leah, and I think about her and miss her all the time. Bella and all the other children with EB that are participating in the BMT trials are giving families touched by EB hope. I am amazed by your family, your Faith and strength, and your ability to tell Bella's story so well, through your words and pictures. Judy T. (Leah's Grandma) in MDAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-71533457717865013482010-06-29T10:46:38.237-07:002010-06-29T10:46:38.237-07:00Its nice to see Bella sleeping peacefully. I can&#...Its nice to see Bella sleeping peacefully. I can't even comprehend what these drugs do to her tiny body. I can see from reading others stories that it has got to get worse in order to get better, what a difficult situation. I just pray that the end result will make it all worth it, I truly believe it will, Bella seems healthy and strong all things considered. If she was my child, I would do the same. Get well soon Bella!Beckyhttps://www.blogger.com/profile/16839521801604195635noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-16549583141631885472010-06-29T10:29:07.609-07:002010-06-29T10:29:07.609-07:00Thinking of you all and sending our love and praye...Thinking of you all and sending our love and prayers. <br /><br />Love,<br />Daycare FamilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-27321059360632289392010-06-29T09:54:53.733-07:002010-06-29T09:54:53.733-07:00Still thinking of you every day. Glad that sweet B...Still thinking of you every day. Glad that sweet Bella is getting some rest, although I know the day time is crappy. Praying she remains stable and able to sleep peacefully. The same for you guys too! Hugs.Patricehttps://www.blogger.com/profile/09720916684467757153noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-60360575996085377502010-06-29T09:16:11.733-07:002010-06-29T09:16:11.733-07:00Bless you all,what a thing to go thru! You are str...Bless you all,what a thing to go thru! You are stronger than I. Praying for you all and that Bella feels better! LydiaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-27233345538061299382010-06-29T08:01:46.485-07:002010-06-29T08:01:46.485-07:00Praying for you'll also. sgPraying for you'll also. sgAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-70536456592474452452010-06-29T07:50:21.394-07:002010-06-29T07:50:21.394-07:00Hey guys,
Jackie and I are thinking of you all. D...Hey guys,<br />Jackie and I are thinking of you all. Don't worry about the fevers, they'll get higher and lower and just keep nipping at you. Celebrex worked wonders for Rafi when she was running 104.8 fevers. Cooling blanket, ice packs, tylenol and celebrex does a body good. Can you brush Bella's teeth with a toothette? If so, get the nurses to give you caphosol, it's an artifical saliva that has shown to help with mucusitis. As they will tell you, it's not going to hurt. Rafi loved it. Give a call whenever you want, my cell is always on.Bretthttp://www.rafisworld.comnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-48764065474772069322010-06-29T07:37:23.776-07:002010-06-29T07:37:23.776-07:00I'm Daylon's Aunt Jess (Brian's brothe...I'm Daylon's Aunt Jess (Brian's brother Brent is my husband) and have started following Bella's story since you contacted Brianh & Jennifer during our fundraisers. Bella is just a little angel! We are praying hard for your family. I'm also really glad you're there with Brian & Jenn. I know it is a great help to them to have another family there who understands. Sending lots of prayers & love your way!Jess Edlinghttps://www.blogger.com/profile/18332034134637598343noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-62240615572391547042010-06-29T04:52:28.982-07:002010-06-29T04:52:28.982-07:00Extra prayers are coming your way. Hope Bella con...Extra prayers are coming your way. Hope Bella continues to sleep through the night for you. That sure would help. Keep up the great work with your updates. I know I check every morning to see how your precious Bella is doing. Take care of yourselves so that you can take care of Bella and Ali. Lots of hugs and kisses. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-11674503978118827102010-06-29T00:29:59.153-07:002010-06-29T00:29:59.153-07:00I'm sorry that Cytoxin is taking a toll on poo...I'm sorry that Cytoxin is taking a toll on poor Bella. I'm glad you've been able to get some zzzs though!Hopefully she'll sleep all night for you tonight. I know I've already said this but I'm glad we're in it to win it together. Erin gave me your message. I was going to take you up on your offer and come chat but it was like a rolling avalanche of events. Thanks for your kindness.Jennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-14223854243532644302010-06-28T23:15:51.476-07:002010-06-28T23:15:51.476-07:00I am friend's with Daylon's Aunt and Uncle...I am friend's with Daylon's Aunt and Uncle and have been following Daylon's story. I saw your comments on their blog and just had to take a look. Please know that all of us that are praying for Daylon would intend for those prayers to reach other children and families in his situation that we may not know about. We will keep Bella's names in our prayers, as well as her family. Good luck, and what a wonderful blessing to have your families there for each other to comfort and be with each other.Greg and Dianahttps://www.blogger.com/profile/12144988572815776621noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-75987741052082269452010-06-28T22:26:44.889-07:002010-06-28T22:26:44.889-07:00can people pray while they sleep?
i am going to tr...can people pray while they sleep?<br />i am going to try....Sarahttps://www.blogger.com/profile/12487216236220020325noreply@blogger.com