tag:blogger.com,1999:blog-257209375427878024.post5661492661723782880..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: February 4, 2011: Wow...Bella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-257209375427878024.post-74862522180117159632011-02-05T18:44:21.431-08:002011-02-05T18:44:21.431-08:00So glad this is a fruitful and affirming trip!
Pr...So glad this is a fruitful and affirming trip!<br /><br />Prayers and hugs to all!<br />Tina in NJAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-52622896193978978672011-02-05T15:11:42.480-08:002011-02-05T15:11:42.480-08:00I read every couple of weeks, going back to catch ...I read every couple of weeks, going back to catch up on what I have missed. I've never commented here. <br /><br />See, my daughter Ember died 3 days after her birth. She was born without some of her critical organs, and also prematurely. The entire time she was alive I sat and held her. I cuddled and snuggled and loved my heart out, and she was in no pain that we could tell, anyway. <br /><br />I think of your Bella and I just can't imagine how it must have felt for you to watch a piece of your heart outside your body going through so much pain. <br /><br />I feel as though nothing I have to say will be of any importance. I'm not going to pretend I know what you are going through, because I don't. <br /><br />What I *do* know and what I *can* say is how your love for your family just bleeds from every post I read. Your commitment to finding a cure for EB is inspirational. I can barely stand to talk about Ember, and here you are sharing Bella with the world, and throwing yourself into making a better world for other people with EB.<br /><br />Thank you for sharing, thank you for all you do, and most of all, God bless your sweet family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-30572246481959472132011-02-05T08:56:24.367-08:002011-02-05T08:56:24.367-08:00Sounds like awesome things are happening at U of M...Sounds like awesome things are happening at U of M! I came across your blog through someones...not sure who...anyway it is amazing to see the progress that is being made. Keep up the awesome work you are doing!Janellehttps://www.blogger.com/profile/02022512882142892704noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-47143049067435942892011-02-05T06:42:51.779-08:002011-02-05T06:42:51.779-08:00So glad to hear all the encouraging work being don...So glad to hear all the encouraging work being done at U of M. I agree with Leah's Nana that someday we won't have to say goodby to our precious children.<br />I, too, have fond memories of our family day in AZ with the two delightful baby girls.<br />Love to all,<br />MomSheila Marchattanoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-64793617236476519422011-02-05T06:31:20.095-08:002011-02-05T06:31:20.095-08:00Dear Tim: Just wanted to say Thank You and God Bl...Dear Tim: Just wanted to say Thank You and God Bless You for all you are doing for all the EB families. Someday there will be a cure and families will not have to say good-bye to their precious children. Thank you again my friend. Love and Peace Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-76096853027156461422011-02-05T05:25:32.371-08:002011-02-05T05:25:32.371-08:00I got goosebumps reading this! Can't wait to ...I got goosebumps reading this! Can't wait to see you tomorrow!Amanda Corinhttps://www.blogger.com/profile/10474125031425026139noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-12463032187257364392011-02-05T03:01:26.243-08:002011-02-05T03:01:26.243-08:00Hi Tim
I have a son with RDEB and am so excited t...Hi Tim<br /><br />I have a son with RDEB and am so excited to hear about all the developments happening in UM for EB. I was wondering would a sibling donor with the exact HLA as the EB child still be the better option for the BMT?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-91561087020144074432011-02-05T00:29:56.027-08:002011-02-05T00:29:56.027-08:00Praying and thinking of you all!Praying and thinking of you all!The Liconashttps://www.blogger.com/profile/08224099578506132814noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-33763916701556781062011-02-04T23:21:17.384-08:002011-02-04T23:21:17.384-08:00Is that Ali in her fave cupboard?
I am delighted ...Is that Ali in her fave cupboard?<br /><br />I am delighted that energy, enthusiasm and FIRE are the main components of your feelings as you spend time in MN. Memories can sometimes hang heavily, but I feel you have your priorities firmly in order - you are celebrating Bella's future and also celebrating your friends' wedding.<br /><br />Sleep tight, all of you, wherever you lay your respective hats,<br /><br />Much love,<br /><br />JaneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-9319758210875949642011-02-04T23:01:05.957-08:002011-02-04T23:01:05.957-08:00Love this picture of our two sweet girls playing t...Love this picture of our two sweet girls playing together.<br />I have such good and precious memories of this day of our families hanging out together. It was a great and special day!!! <br />Happy to hear you are having a good time in MN.<br />Love from the Ringgolds in AZ, <br />Paul, Heike and Liesel.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-46168360414576380902011-02-04T21:59:18.355-08:002011-02-04T21:59:18.355-08:00Hi Ringgolds! Glad you made it safely to MN (whic...Hi Ringgolds! Glad you made it safely to MN (which looks strangely like TX these days!) Can't wait to hear more about the hospital, your meetings and the wedding.<br /><br />...and is there really such a place as Noodles & Co? That sounds SOO good!! :)<br /><br />Love and prayers to all of you!!<br />Laura (for Team A)Laura Ahttps://www.blogger.com/profile/06701139472899714172noreply@blogger.com