tag:blogger.com,1999:blog-257209375427878024.post5851456948443160801..comments2023-11-11T00:44:20.900-08:00Comments on Bella's Blessings: The Return to CHOCBella's Blessingshttp://www.blogger.com/profile/09372603162401786615noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-257209375427878024.post-65171960440271749402009-09-29T19:19:07.768-07:002009-09-29T19:19:07.768-07:00In VBS this summer we called seeing "God in t...In VBS this summer we called seeing "God in the details" as you put it "God Sightings." May you and your viewers continue to look and admire those God Sightings.Erica and Jayhttps://www.blogger.com/profile/15872167384013579297noreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-58727489797941724062009-09-28T08:29:51.932-07:002009-09-28T08:29:51.932-07:00Hi Tim and Ang, I really hope you can get the G-Tu...Hi Tim and Ang, I really hope you can get the G-Tube, it is a life saver and takes so much of the stress away from everything you go through with an EB baby. I cant imagine life without it!! Luke had his placed at 2 1/2 years old after having long episodes of constipation, with the last episode being 9 days without passing anything the day prior to the G-tube placement. He also stopped eating and drinking because he was so backed up. Once he had the g-tube placed it made both of our lives so much better. <br /><br />If you guys need anything give me a call. Luke is in school Monday - Friday 8- 2:30, and im free at that time. <br /><br />Ive been keeping up with your posts and enjoy reading your family journal.<br /><br />Lots of love to your family, Danialdanialnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-54522285614569788572009-09-28T08:17:51.302-07:002009-09-28T08:17:51.302-07:00Hey Tim,
I saw a few entries back that you were ...Hey Tim,<br /><br /><br />I saw a few entries back that you were worried about losing people, but James and I have been following your blog as much as we can... we keep your family in our prayers and can't imagine the journey you are on. <br /><br />-james moore and kristen pauslenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-257209375427878024.post-35890209491769620082009-09-27T22:27:01.387-07:002009-09-27T22:27:01.387-07:00I know a g-tube is a HUGE step, but it would make ...I know a g-tube is a HUGE step, but it would make many things much easier! We did not get one for my daughter and that was my biggest regret! It would have made life so much easier! Also, if you are still considering the bone marrow transplant at some point, she'll mostly likely need one before that especially if she is still an infant/toddler. Not saying you need to get it during this hospital stay (cause you'd be there for another week or so) but something defiantly to consider, and I know other EB parents would echo me on how wonderful those things can be!Sara Denslawhttps://www.blogger.com/profile/09625588629095084632noreply@blogger.com