Bella's Blessings: December 27, 2011: Catching Up...

Tuesday, December 27, 2011

December 27, 2011: Catching Up...

Heaveno!

Sorry, I've been slacking on blog duty. Thursday, I had writer's block, and Sunday, I was exhausted from a wonderful Christmas Day. So, here is a photo essay of it all...

God night.

P.S. Blogger says I've reached my quota with pictures on this post, so I'll hook you up with another shot of Bella next time...

7 comments:

JessicaDecember 27, 2011 at 11:08 PM
Looks like you guys had a great Christmas!
(Love Bella's tree with all of her fabulous socks!)
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AnonymousDecember 28, 2011 at 6:09 AM
Love all the pictures! Thanks!
Love,
Mom
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MonDecember 28, 2011 at 11:00 AM
Ok, two things:

Julian looks EXACTLY like you if you've never noticed (LOL)

The nativity picture is the most beautiful nativity picture I've ever seen, seriously
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AnonymousDecember 28, 2011 at 1:03 PM
You don't need words with those beautiful pictures.
Happy New Year!
Lots of love,
Mariana,UK
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EmilyDecember 29, 2011 at 8:34 PM
I love it all!! Thank you =)
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RebeccaDecember 30, 2011 at 7:27 PM
I noticed Julian has sores on his head. Is that EB related? I sure hope not!
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jardinera lindaJanuary 3, 2012 at 12:36 PM
love the fabulous socks christmas tree.

happy new year, family!
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A Little About Bella And EB...

Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.