Our Poceeds Partner is Pioneering Unique Cures for Kids, or P.U.C.K.!
Pioneering Unique Cures for Kids (P.U.C.K.) was founded by Lonni and Jay Mooreland after their daughter Sarah passed away. Sarah also had RDEB, and was patient number 2 in this same study Bella was patient number 12 in. She also died from the impact of the chemotherapy on her body. After Sarah died, the Moorelands moved from their home in northern California to Minnesota to start P.U.C.K. with the goal of raising funds and awareness for not only EB, but two other rare diseases that the University of Minnesota specializes in treating: Fanconi Anemia (FA), and Adrenoleukodystrophy (ALD).
We are proud to join P.U.C.K. in their efforts to keep the doctors and researchers where they belong (in the lab and clinic) doing what they do best (research and patient care). That is their unique ability. They are NOT fundraisers. They are not even grant writers. These tasks often fall upon their shoulders, but it's not what they are here on this planet to do. There are others whose unique ability is to write grants or speak and host events to raise money.
In addition to simply raising money for P.U.C.K., we are committed to producing an entire suite of products, services, and information to share our experience in a way that inspires and creates value in people's lives. From any venture we undertake, HALF OF ALL PROFITS WILL GO DIRECTLY TO P.U.C.K., since we know that the money we send them will go DIRECTLY to this research study that both Bella and Sarah gave their lives to.
Could we do any less and be able to sleep at night?
No.
Learn more about P.U.C.K. at www.puckfund.org.
Pioneering Unique Cures for Kids (P.U.C.K.) was founded by Lonni and Jay Mooreland after their daughter Sarah passed away. Sarah also had RDEB, and was patient number 2 in this same study Bella was patient number 12 in. She also died from the impact of the chemotherapy on her body. After Sarah died, the Moorelands moved from their home in northern California to Minnesota to start P.U.C.K. with the goal of raising funds and awareness for not only EB, but two other rare diseases that the University of Minnesota specializes in treating: Fanconi Anemia (FA), and Adrenoleukodystrophy (ALD).
We are proud to join P.U.C.K. in their efforts to keep the doctors and researchers where they belong (in the lab and clinic) doing what they do best (research and patient care). That is their unique ability. They are NOT fundraisers. They are not even grant writers. These tasks often fall upon their shoulders, but it's not what they are here on this planet to do. There are others whose unique ability is to write grants or speak and host events to raise money.
In addition to simply raising money for P.U.C.K., we are committed to producing an entire suite of products, services, and information to share our experience in a way that inspires and creates value in people's lives. From any venture we undertake, HALF OF ALL PROFITS WILL GO DIRECTLY TO P.U.C.K., since we know that the money we send them will go DIRECTLY to this research study that both Bella and Sarah gave their lives to.
Could we do any less and be able to sleep at night?
No.
Learn more about P.U.C.K. at www.puckfund.org.
