Wednesday, May 27, 2009

Anabella's Story

Bella was born via C-section on Wed. 052709 at 5:40 pm weighing 7 pounds 12 ounces and 20 inches long.

Unfortunately, she has a rare skin condition that caused the skin on much of her left leg to not form in utero, and causes blisters and peeling of layers of skin across her whole body.

A diagnosis is being withheld pending a skin biopsy next week. The condition Doctors are considering has 3 main types with several subtypes each ranging in acuity from superficial to fatal. She was taken immediately from the OR at St. Joseph's to the Neonatal Intensive Care Unit (NICU) at Children's Hospital of Orange County (CHOC) and placed in an isolette to keep her humidified and warm.

She experienced a seizure on 052809 at 00:30 in the morning. The Doctors are unsure of cause, though the Geneticist on the Team suggests that one strain of her possible condition carries with it seizures.

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