Wednesday, November 25, 2009

Happy Thanksgiving

Okay, so much for regular posts. Sorry about that!

First things first...

Bella had her 6 month checkup yesterday. Her stats, you ask?

95% Height
75% Weight
97% Head Circumference

Our little bean is SPROUTING!

We are happy and grateful she is thriving so well despite the constant blistering and healing she goes through. We are so thankful for her feeding tube. Before the tube, she was 50% percentile in weight, which isn't necessarily bad, but the PROCESS of keeping her at 50% was GRUELING borderlining on torture for all involved. Now, she drinks when she wants, and if she's crabby or asleep, she gets the tube and all is well. The Doc has her starting on rice for 2-3 weeks, then we're on to pureed veggies.

We are a little dazed by the transition, because given how bad her mouth and throat were early on, we honestly never thought much about the chance of getting to spoon feed her orally. What a gift.

Despite the ongoing challenges with blisters, Bella wakes up every day BEAMING from ear to ear. Her radiant beauty and happiness and JOY make it all worth dealing with.

Daycare has actually been going well in November. In December we are going to scale both kids back to just one day a week, and I will take care of them the rest of the week. We are OUT OF ROOM in our condo and need to get into a house, and saving the HUGE monthly hit on daycare will almost equal our current mortgage payment! I will work from home developing products and services I can deliver from home instead of in front of a client/patient. More on that later.

Ali grows cuter every day and loves her dance class she is in on Saturday mornings. She likes to call Bella her "Cuteheart!" Get it? (cutie + sweetheart!) Too cute.

Mommy and daddy are wiped out from 6 months of sleep deprivation! We snuck away for our anniversary and spent the weekend at Disneyland without the kids. THANKS GRANDMA AND GRANDPA for watching the girls so we could be kids again!

We'll try to be better about posting more often. Thank you for being in our lives. We have SO MUCH to be thankful for this Thanksgiving, and you are a large part of that list!

Blessings to all.


  1. What a great post! It sounds like your girls are both doing amazing. The feeding tube is such a blessing in disguise, isn't it? Who knew we would be thankful for something like that.

    I hope you had fun at Disneyland. I was just there Tuesday with my son!

  2. i love this post :)
    the pictures are perfect...
    i love that you haven't posted recently, ONLY because it means life it "normal", which is great!
    good to see you guys on Sunday...those girls are getting cuter by the day!
    Happy Thanksgiving to all of you!

  3. Thanks for the update Tim! I love staying connected and hearing about how you and your beautiful family are doing :) Happy Thanksgiving to you, Ang, Ali, and Bella.

  4. Glad to see that you all have kept the faith. Please forgive me for my stumble. Lifting you all up in prayer. Stay strong.

  5. Happy Thanksgiving Tim, Ang and family,

    What wonderful news to hear and I'm so happy for you all!