Thanks to you diehards who even get on here over the weekend!

Dressing update: wound care took 1 hour today! We're starting to get the hang of it, and our neighbor Becky has volunteered to assist since our home care nurses couldn't staff Friday, Saturday, or Sunday. It's all good; I'd rather have Becky by our side than any stranger at such a time. NO new blisters today. Although, we figured out that Bella is doing a number on her self. We uncovered a wound on her left shin that we couldn't figure out where it came from. We thought maybe it was from our hands lifting her legs during diaper changes, but turns out, she kicks herself in the left shin with the inside of her right foot! Tomorrow, I will add shin guards.

Reflux update: Whatever it is Bella has, the formula didn't completely do the trick. When she either passes gas or poops, she screams in pain. That's really a drag, because she's pretty gassy. Really don't know what to do till Monday about that one. Also, she kicks and hits like a street fighter. She HATES diaper changes (kicks and screams till she's purple, and tonight was inconsolable even after a fresh diaper and a bottle. Is that colic? Ali was a saint in comparison!

Lastly, please go to http://www.youtube.com/watch?v=VZ9MXSCfMzw to see a tender video of Bella. It is her inner essence revealing itself amid the tumult her body is going through.

We love you,

Tim & Ang

P.S. Please purchase Bella's Song available above! Do it now! :)

Providence Story of the Day

We ran out of the most important product for Bella's wound care yesterday. No problem; box loads of products were en route and would be here today. However, on Thursday the home health nurse says she can only come at 9am...products won't be there by 9 am. I'm gonna have to use a different dressing...something less than what the wounds need right now.

9:05 am: The nursing manager calls to say the nurse called in sick with the flu.

Products show up at 10:30.

We head over to CHOC for Lactation Clinic, come home, and home health leaves a message: no coverage. (By the way, they already said no coverage over the weekend, too. So much for the 7 consecutive days of nurses the CHOC Case Manager promised me)

1 hour later, Becky ,my next door neighbor the nursing administrator indicates not only will she come Sat Sun, but tonight as well.

8pm: We dress Bella's wounds in 90 minutes listening to relaxing classical music, and use the RIGHT dressings for Bella's left leg with the RIGHT amount of people.

Bella slept well last night and today, crashing from her two day long scream fest. The Isomil formula supplementing the breast milk seems to be working.

While her fake looks a bit worse for wear today, ALL of Bella's wounds look better than yesterday.

Thank you all for visiting this site. Please go to www.careforanabella.com and buy Bella's Song.
I need to sleep now.

We love you all!