Tuesday, June 23, 2009

The Big Day

Well, today was the big day...the appointment with Dr. Metz, Bella's pediatric dermatologist who did the skin biopsy at CHOC.

The good:

Dr. Metz examined Bella and said her case looks MILD!

Bella weighed in at 9 POUNDS which means she's gained a pound in the last 2 weeks.

Dr. Metz said we were doing a good job with wound care and staying on top of Bella's needs.

The bad:

The biopsy was unable to determine dominant or recessive subtype. Genetic testing needs to be done.

Bella still turns into a gremlin nightly at 8pm.

We'll take it.

Thank you all for your continued love, support, and PRAYERS. They are healing Bella every day. One day, Bella will look back and say, "Yeah, I was born with this rare skin condition, but when they brought me home from the hospital, it went away."

We love you all. Keep it comin'.

View Bella's video at http://www.youtube.com/watch?v=VZ9MXSCfMzw

Purchase Bella's song above.

1 comment:

  1. Comments from Care Pages Site:

    Posted Jun 24, 2009 3:26pm
    by Ann Dieringer

    Wow - I haven't checked in for several days; Bella's skin looks awesome. My prayers continue... Hugs, Ann Dieringer
    Posted Jun 24, 2009 11:10am
    by Tracy Seem

    So happy to see all the new pictures, what a cutie. Bella's face looks beautiful and clear. I love her very intent look. She is clearly a fighter. Happy also to hear the DR used the word "mild".

    You guys are really superstars and doing an amazing job!!

    Lot's of love,

    Tracy Jon and the boy's
    Posted Jun 24, 2009 9:17am
    by Jan Pflaum

    Thank you for sharing the pictures, we love them. Hopefully we will get down the hill to see your family next month, we will let you know in plenty of time. Love and continued prayers Uncle Bill and Jan
    Posted Jun 23, 2009 8:32pm
    by Robin Setto

    Dear Tim, Angelique, Ali and Bella,
    All of you are showing strength I bet you never thought you had! Praying for patience and healing.
    -Michael and Robin Setto
    Posted Jun 23, 2009 7:34pm
    by jae cho

    I am really glad that Bella is getting well now. Take care of yourself and your family!
    Posted Jun 23, 2009 7:30pm
    by Albert Alva

    Bella may also look back someday and say, "Yeah, I was born with this rare skin condition, but thank God my family had the love and patience to nurse me into good health"
    Posted Jun 23, 2009 7:07pm
    by Sheila Marchetta

    Glad to read the update -- especially the "mild" part. Pictures are adorable.
    I see that big bowl of what looks like the remains of "greens" in front of Ang -- plus noted Bella's weight gain. Doing great, Ang!!
    Love to all,

    Anabella was named in the request for prayers in this Sunday's bullitin at St. Columba's in Durango.
    Spoke to Pat Deeley, who sends her love and will also pass along requests for prayers to her family.
    Posted Jun 23, 2009 5:12pm
    by Russ Baldwin

    Thanks for keeping us up to date. We will keep bending God's ear.
    Russ & Jen
    Posted Jun 23, 2009 4:58pm
    by Sara Cooper

    Those latest pictures made me smile :)
    What a sweet face...
    (makes me think you are making up the gremlin stuff...but then, I remember that my kids did the same thing...but I remember their bad time to be closer to dinner time)...and, I was not surprised to see Ali, in another princess dress...and using her pink straw cup :)
    Thanks for the updates!
    Posted Jun 23, 2009 3:47pm
    by Richard Kelly

    Just checking in. Thanks for the updates, Tim. The word "mild" never sounded better.

    Posted Jun 23, 2009 3:44pm
    by Treisa Cassens

    Excellent news ... mild works! Hope you are all getting some sleep! Hugs and Kisses.