Friday, June 12, 2009

Providence Story of the Day

We ran out of the most important product for Bella's wound care yesterday. No problem; box loads of products were en route and would be here today. However, on Thursday the home health nurse says she can only come at 9am...products won't be there by 9 am. I'm gonna have to use a different dressing...something less than what the wounds need right now.

9:05 am: The nursing manager calls to say the nurse called in sick with the flu.

Products show up at 10:30.

We head over to CHOC for Lactation Clinic, come home, and home health leaves a message: no coverage. (By the way, they already said no coverage over the weekend, too. So much for the 7 consecutive days of nurses the CHOC Case Manager promised me)

1 hour later, Becky ,my next door neighbor the nursing administrator indicates not only will she come Sat Sun, but tonight as well.

8pm: We dress Bella's wounds in 90 minutes listening to relaxing classical music, and use the RIGHT dressings for Bella's left leg with the RIGHT amount of people.

Bella slept well last night and today, crashing from her two day long scream fest. The Isomil formula supplementing the breast milk seems to be working.

While her fake looks a bit worse for wear today, ALL of Bella's wounds look better than yesterday.

Thank you all for visiting this site. Please go to and buy Bella's Song.
I need to sleep now.

We love you all!

1 comment:

  1. From Care Pages:

    Posted Jun 13, 2009 4:19pm
    by Russ Baldwin

    We will continue to hold all of you up in prayer. We will pray that Bella grows out of EB.
    Love & Prayers
    Russ & Jen
    Posted Jun 13, 2009 11:56am
    by Treisa Cassens

    This is beautiful!
    Posted Jun 13, 2009 9:58am
    by Stacey Krsulic

    Just when you think you're being thrown for a loop - God sends an Angel! Bella is gorgeous - I love the recent picture where she is staring so intently into Mommy's eyes - nothing like a baby's love. And what a wonderful choice she made for parents! Hugs and positive energy to all!