Bella's Blessings: November 10, 2011: What is the sound of one hand blogging?

Friday, November 11, 2011

November 10, 2011: What is the sound of one hand blogging?

Heaveno!

The only thing major to report since Tuesday is that there was one family member missing from the pictures. With no further adieu, thanks to our friend Sara cooper, I give you Julian...

God night!

Let's add Ali...

and Bella...

8 comments:

AnonymousNovember 11, 2011 at 5:35 AM
Beautiful children ....
Mariana,UK
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AnonymousNovember 11, 2011 at 7:38 AM
What a cutie Julian is. He is really growing and such a happy baby. Ali is so cute too. Julian and Bella look alot alike. What a beautiful family. Great pictures.

All Our Love;
Myrna & Dwight
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Jennifer EdlingNovember 11, 2011 at 9:40 AM
Super cute little guy you got there!
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The LiconasNovember 11, 2011 at 5:21 PM
These are so great! Glad you are all doing well! Much love and prayers!
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AnonymousNovember 12, 2011 at 4:55 PM
Oh, your babies. What a yummy trio!

Fondly,

Jane
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Laura ANovember 12, 2011 at 7:08 PM
LOVE that sweet J's tummy!! It's likely to go down in Cute Baby History, along with Bella's eyes and Ali's smile. What a precious family!

...and happy anniversary to you and Ang! Hope the Ringgolds have a wonderful weekend.

Love from TX,
Laura (for the expanding Team A - #6 is coming in June!)
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Manda_Spina_Bifida_GirlNovember 15, 2011 at 6:37 PM
At least you got to have pics of precious Belle (I don't mean to be crued) BUT some families do'nt even get the chance.

Oh my Julian has grown so much!!!!. I love the one with him shirtless and his little belly button shown AND the one of his smiling from ear to ear. Miss Ali has grown into such a grown little woman...yes I said woman.

All your children are inside and and out.

Amanda <3
Hobart, Australia.
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AnonymousNovember 18, 2011 at 4:33 PM
Love that beautiful smile on Julian.
Mom
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A Little About Bella And EB...

Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.