Wings of Hope was awesome. Sold out. We exceeded our fundraising goal. We got lots of great comments on how well it was put together. I had the opportunity of picking up and dropping off Dr. Wagner at the airport, and to get two hours of one - to - time with him was amazing. What he shared in his presentation was mind blowing...
.. and yet, I just told Ang that I really just don't feel right sharing all the details right now after reading our dear friend Courtney Roth's update just a little while ago.
So, for now, if you want to see some beautiful pictures, CLICK HERE and view our friend and Team Bella member Sara Cooper's pictures from the day on Facebook....
... but really, what I request you do is go over to Courtney's blog, read her update, leave her a comment of support, and say a prayer for her and Tripp. They could really use it. CLICK HERE to visit her now.
Thank you.
God night.
I love this picture. It says so much.
ReplyDeletePS- You did awesome yesterday and I feel so blessed to have been part of the PUCK team
(sigh)
ReplyDeleteSweet, sweet, Tripp....on my mind, and in my heart.
Perfect picture for this post.
Hugs and care also from Flinland. It is so unfair and wrong tbat babies have to suffer so much, theirl entire life sort of. Love and thoughts.
ReplyDeleteWhat a beautiful family picture. My heart is broken for Courtney and am praying for her and sweet Tripp. I know this must be hard on the Ringgolds, too - praying for you as well!
ReplyDeleteLove from TX,
Laura (for Team A)
Dear Tim, Ang, Ali and Julian,
ReplyDeleteHappy New Year!
I was delighted to see such amazing photographs from your big day. And I was devastated to be directed to Courtney's latest and most heartbreaking post.
I sat and thought a lot about all of you, and the fact that EB brings us all together. After a while, I just exhaled and thought how wonderful it is that, despite the desperate sadness of Tripp's days and Courtney's moments with him, and despite the unspeakable loss that came when Bella passed, you are all doing such amazing things to push towards further research and the ultimate eradication of this cruel disease. Witness yesterday's lunch...and the very fact of your blogs has brought attention to the disease in an extraordinary day.
Once more, from around the world, there is a circle of care surrounding your wonderful family in celebration of a truly successful fundraiser, and
there is a fortress built of love and admiration of Tripp and his amazing mother and their family.
Sorrow and joy in one thick slice today. EB is a heartbreaker but there are some who know how to start to make it heal - I'm talking about all the parents of EB kids, whether in their daily care or in the realisation of bigger dreams such as your fundraiser.
Thinking of you all,
From the rooftops, with love,
Jane
Jane...so well said. Perfectly written. I'm sending you a hug...for saying it better than I ever could!
ReplyDeleteSo sad to learn of Tripp's passing today. No more pain or bandages. Now you can run free and play all day little drummer boy. Tears for his mama.
ReplyDeleteThank you for all your efforts put towards a cure.
ReplyDeleteTHANK YOU