Bella's Blessings: January 31, 2012: Prayers for Jonah...

Tuesday, January 31, 2012

January 31, 2012: Prayers for Jonah...

Heaveno!

We're doing well; life is GOOD.

Our little buddy Jonah is having a rough week, though, and could use your focused prayers. Please also say a prayer for his amazing mommy and daddy, Patrice and Matt.

Go give them some love, be good to the world, and we'll see you Thursday.

God night.

4 comments:

AngelikaFebruary 1, 2012 at 12:43 AM
Bella is a copy of Ali in this foto. Beautiful foto of u 3 =)

I will give thoughts to Jonah and his parents...
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SaraFebruary 1, 2012 at 5:56 AM
Done.
Lots of love to Jonah!
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AnonymousFebruary 2, 2012 at 12:42 AM
Beautiful picture.
Praying for Jonah and his family.
Mariana,UK
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Manda_Spina_Bifida_GirlFebruary 5, 2012 at 1:03 AM
I have always lived this picture of you and your girls!!

Amanda <3
Hobart, Australia.
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A Little About Bella And EB...

Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.