Bella's Blessings: February 20, 2011: Game On

Sunday, February 20, 2011

February 20, 2011: Game On

Heaveno!

Well, it was a busy weekend for us. First of all, DEEP thanks to our friend, Kelli, Kelly for hosting a fundraiser this weekend. She hosted a Zumba-thon. Thanks go out to our other friends Jennifer and Treisa for helping out, as well as Joanne, one of Kelli's Zumba instructor colleagues. It was a success! Much fun was had by all who danced the afternoon away. Angelique spoke a little, and provided some more info for the participants.

I attended an 3 day event as well and have lots to share, but we're wiped out, so we'll see you tomorrow!

1 comment:

AnonymousFebruary 21, 2011 at 1:59 AM
I can't wait to hear all about the weekend.
I'm sure that you need a rest!
Have a good week.
Love,
Mariana,UK
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A Little About Bella And EB...

Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.