Tuesday, August 9, 2011

August 9, 2011: Too much...


I do too much.

Tonight is movie night.  I'm getting pretty close to running out of pictures of Bella, and I'm trying to time it so I run out when Julian arrives.  That way, I can start showing pictures of him (Should I resolve my camera issues - thanks for the tip, Tracey).  So, to help stretch this process out to its bittersweet transition,  I give you the last video we have of Bella before she was intubated.  God, I miss her.

God night.


  1. Hang in there Mom and Dad!

  2. She really reminds me of Daylon in this video (her smile I think). She is such a little doll. I can only imagine how hard this is for all of you. We love you guys! Keep us posted on little Julian! I'm surprised we haven't seen him so far!
    Love you guys!

  3. Bella was a beautiful little girl, who was just in the beginning stages of looking more like a little girl rather than a baby. I always appreciate reading your posts - and can't wait to see pictures of your baby boy! Love, Terri

  4. What a beautiful little girl. Her smile in the pictures just melts your heart. Will be looking forward to the posts of Julian. But will sure miss seeing the pictures of Bella. A new chapter in your lives will be opening soon and Bella is looking down and letting you know that things are good and that Julian will be an inspiration and such a blessing as she is to you. I always love to read your posts. Hang in there.

    All Our Love;
    Myrna & Dwight ( CA )

  5. The tears started before I pushed play and still flow. Missing your beautiful girl too...always.

    Sending my love to all as always, sweet kisses for Ali and belly rubs for Julian.

    Denise WI

  6. Oh dear this breaks my heart. Bella is gorgeous. So sorry Ive not posted on your blog at all in months, well since October really... I've still checked your blog regularly, I love reading it. But that day of logging on and seeing that sweet picture of Bella... I didn't even have to read it, I just closed the laptop there and then. So heartbreaking, I wish there were more pictures of Bella to last a lifetime. I know you guys wish that too.

  7. Oh, how lovely she is.

    And always will be.

    Fondly, with a heap of tears queueing up to get out of my eyes and onward down my face,


  8. What a beautiful video of such a sweet baby and two parents that so obviously love her. Though there is much sadness, this video made me smile tonight, thank you for that.

    Mobile, AL

  9. Of course you do. Can't watch this yet but will watch it tomorrow once I'm less "verklempt." Bella was (and is!) a precious angel.

    Love and prayers for all of you (and also for Julian - can't wait to see him!)

    Love from TX,
    Laura (for Team A)

  10. This also breaks my heart, but I love it. She is so sweet- I love the way she is looking at you and moving her mouth like she is singing along. I'm still so sad that she is gone- and can't believe how fast things changed from then until I met her. Boy Tim, you know how to make your friends cry! Just kidding, much love to you all. I'm so glad you have so many videos of sweet Bella to help remember her. She is so funny!

  11. She is beautiful. So beautiful. I wish I had some kind of magic wise words that would ease the hurt, but all I have is the knowledge that she will live forever in our hearts and through your efforts to raise awareness about EB. You're making a difference. You ARE. Some days you may wonder if you are, but trust me, you are.

  12. Thank you for sharing this video... she is so wonderful. You make me miss her and I never met her. She is perfect <3

  13. What a fantastic video! I, like everyone (and obviously you guys), miss that sweet strong girl. She still inspires me! Thank you for posting the video :)
    We love you guys and can't wait to meet Julian!
    The Booms