Hi..I have been following Bella for a few months and I broke down when I read that she died..I lost my father 2 months ago to cancer..reading your blog over the last few days has helped me with my own grief..I read everyword you typed over and over, about faith and God, what you wrote has changed my life..and I would just like you to know that your precious little girl has touched me and my family all the way here in Nova Scotia, Canada..I am a better person for being allowed a glimpse into her life to..I will be making a donation, its the least I can do for Bella, who gave so much..bless you all..I told my dad to keep an eye out for Heaven's newest littlest member..I'm sure she is melting hearts up there!
Amanda's post made my eyes "water"! What sweet words from a total stranger. Tim you must feel so proud, even during this difficult time. She is so right though. I read your words with such intention. They really make me think about who I am as a person and how I can better myself for my family, my friends, and strangers. Your writing is such a gift! Thank you for continuing to keep up the blog and continuing to share yourself with all of us. Can’t wait for you guys to come home! Love and prayers always, The Vanderbooms
Such an honor to walk in Bella's name this weekend! Met so many wonderful people who love you, love Bella, love Ang, love Ali, love your whole family, and who love God.
I'm still reading, sorry I haven't commented lately! I wish I could be there for the memorial; if it makes it to the web I will certainly be watching! Either way I will be thinking of you all and of Bella.
I hope you get the most beautiful weather on Wednesday. It'll be dark here but lots and lots of candles. Even if the webcast doesn't work. Puck received all I could spare this month, will keep on giving, for all the precious EB-children and their families. No one should never ever have to pay the price you did.
Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.
Wish I lived nearer, I would so be there. If you find a way to webcast it, I will be there. lol
ReplyDeleteMichelle in KCMO
Awesome - Thanks for posting the finalized date and time.
ReplyDeleteHi..I have been following Bella for a few months and I broke down when I read that she died..I lost my father 2 months ago to cancer..reading your blog over the last few days has helped me with my own grief..I read everyword you typed over and over, about faith and God, what you wrote has changed my life..and I would just like you to know that your precious little girl has touched me and my family all the way here in Nova Scotia, Canada..I am a better person for being allowed a glimpse into her life to..I will be making a donation, its the least I can do for Bella, who gave so much..bless you all..I told my dad to keep an eye out for Heaven's newest littlest member..I'm sure she is melting hearts up there!
ReplyDeleteAmanda's post made my eyes "water"! What sweet words from a total stranger. Tim you must feel so proud, even during this difficult time. She is so right though. I read your words with such intention. They really make me think about who I am as a person and how I can better myself for my family, my friends, and strangers. Your writing is such a gift! Thank you for continuing to keep up the blog and continuing to share yourself with all of us.
ReplyDeleteCan’t wait for you guys to come home!
Love and prayers always,
The Vanderbooms
Dear Ringgold Family,
ReplyDeleteWe will be with you in prayer here in AZ during the memorial Wednesday. Much love to all of you.
Michael and Robin Setto
Michael, Ryan and I hold you in our hearts.
ReplyDeleteTerri
Tim, could you post your Ronald McDonald House address again (supposing you'll still be there for a week or so)? I cannot seem to find it!
ReplyDeleteHoping to make it to the memorial in person or in spirit.
Such an honor to walk in Bella's name this weekend! Met so many wonderful people who love you, love Bella, love Ang, love Ali, love your whole family, and who love God.
ReplyDeleteI'm still reading, sorry I haven't commented lately! I wish I could be there for the memorial; if it makes it to the web I will certainly be watching! Either way I will be thinking of you all and of Bella.
ReplyDeleteBest,
Cara in Tucson
Will be there in spirit. "Flowers" were sent to PUCK, in Bella's memory.
ReplyDeleteBest,
Carla, from Portugal
I hope you get the most beautiful weather on Wednesday. It'll be dark here but lots and lots of candles. Even if the webcast doesn't work.
ReplyDeletePuck received all I could spare this month, will keep on giving, for all the precious EB-children and their families. No one should never ever have to pay the price you did.
Praying for you,
Jennifer, Sweden
My thoughts and prayers are with you and your family tomorrow, and always. I will be wearing my silly socks in honor of Bella. ;-)
ReplyDeleteHugs,
Karen