Monday, October 11, 2010

October 11: Day +101 Part Two



Anabella Claire Ringgold
May 27, 2009 - October 11, 2010

Heaveno!

Sorry for the late post... been a l-o-n-g day.

Well, as you know, Bella's heart stopped beating today in the middle of us sitting her up to change her ulcer dressing. I'll get to the rest of it, but I'll take it from the top, as much for me so I can look back and remember the day as for you.

My first feeling on my knees out of bed this morning was not a good one. I had a bad feeling about today, but when I went to my morning prayer spot, while things didn't feel good, I had a strange sense of serenity. Hard to explain.

Anyway, I walked in the room and my suspicions were immediately confirmed. First off, we lost the A-line over night, and they couldn't get a cuff pressure (shock - deja vu). Also, they couldn't get her electrolyte labs to read correctly. In rounds, they got a lactate back which was 7.5, and it's supposed to be under 2. That meant Bella was not perfusing blood through all her organs any more. Despite any past hypotension, her lactate was always good. So, they went up on vaso and added phenylephrine back into the mix.

After rounds, when I went back into the room, I took a good look at Bella, and she did not look good. After watching my dad die at home in hospice, and after interning in hospice and the ICU, I have seen people close to death before. Up till this morning, I hadn't seen Bella close to death like I did today. Her pupils were unresponsive, her coloring was off, and her left arm, normally responsive, was a limp noodle.

I went and called Angelique. She was planning on taking Ali to get her hair cut and go to the apple orchard today. I told her she needed to come immediately. Bella did NOT look good, and I had a bad feeling that she was on her way out. While in the hallway, I saw the wound nurse, and I wanted her to see a spot on the back of Bella's head that I thought might be another pressure ulcer. I grabbed her, told her I could use her opinion, and she came in the room about 15 minutes later.

We sat Bella up like always, and out of nowhere, just before finishing up, Bella's heart rate just plummeted to 65. We laid her back down immediately and started to give her oxygen, her heart rate then just went away. The team was in the room so fast you wouldn't believe it. They worked together in the most organized, focused manner. They were simply amazing. They began chest compressions before I knew what was going on, and I just stepped back and watched the process of my daughter dying. She did not respond after 2 minutes, and the attending ICU doc announced they would go for 10 then call it, and we all agreed. The BMT attending doc stood beside me and coached me through the whole thing, and explained that I could tell them to stop at any time. I called Angelique right when they came in the room and told her we were coding, so I knew she was on her way with Ali, and I didn't want to call it without them. Plus, Bella's bed is foam, and she sits on a foam mattress on top of foam, so even with the compression board underneath, I didn't have the occurrence that they were really hurting Bella too much.

At 8 minutes, I walked into the hall and just begged Ang to walk through the doors. She did a minute (eternity) later, and the social worker quickly swept in and took Ali to the end of the hall to play. I explained the situation to Ang, and she began to cry in my arms. I asked her if she wanted to go in the room and she said yes. At that point we were at 10 minutes, and we had them stop. We kicked all non-essential staff out of the room, and it was just our nurse, the attending ICU doc and the three of us. I put my hand on Bella's head, and I asked the ICU doc what would happen next, because Bella was breathing on her own.


The doc cocked her head to the side and looked at Bella, reached for the stethoscope, and began to listen to Bella's chest. After a second, she said, "What a minute, I think I hear something. Yup. Yup. There's a pulse, it's coming back. She's coming back!" I immediately hooked her EKG leads back up (they got pulled off during the melee) and said, "She's not done. She's not done." I looked up at the monitor. Within a short amount of time, her heart rate was 160. Un-freakin-believable. That's when I updated the blog and facebook.


We weren't out of the woods at all, we knew, but she also clearly seemed to be rallying one last time. We all agreed no more CPR would be done, however. Mommy began to read the blog letters to Bella, and I played my guitar for her. I went to call my mom to update her, and cram some food down my throat. When I returned, it was about 2:30, Bella's heart rate was down to 92, and the wave form looked weak. I felt like it might be the end, so I walked up to Bella, and held her hand.

I looked up at the monitor, and her heart rate read zero.

Bella apparently waited for me to come back into the room, and once she had her mommy and daddy by her side, she left.

This time, it was quiet and peaceful.

We took her off the vent, and unhooked her from her lines, and sat in my green chair and finally got to hold her. She took her last breaths in mommy's arms.

We couldn't have asked for a more beautiful moment for her transformation from life to afterlife.

The moment her heart rate went to zero? Her song came on the iPod. I got to harmonize and sing with myself as I helped take off her lines and tubes. It was the song she heard as she was born, and it was the song she heard when she died. Planned by me the first time, planned by God the second.

The chaplain came in and said a beautiful prayer service for Bella.

They were all so gracious. They gave us as much time as we needed to say goodbye, so we took it. This was our opportunity to say goodbye properly.

Let me bring Ali into the mix here.

Erin came (GOD BLESS HER) on a moment's notice to the hospital to take Ali on an impromptu play date with Ellery. While Ali and I were downstairs waiting for Erin to arrive, I began to have "the talk" with her. I asked her if she knew about heaven, which I knew she did. I told her how we all go to heaven eventually, and that Bella was really sick today, and that she may decide to go to heaven today.

She asked me, "How do we get into our bodies?"

Seriously, she only 4 and a half, folks.

"Well," I replied, "Our souls start out in heaven, then we are born into these bodies we use. sometimes only for a few hours or days, sometimes for years and years. When we're done with them, we leave 'em behind and go back to heaven."

"Oh."

We agreed that if any of us went to heaven, that the rest of us would be sad. I told her that the kicker is that we never know when any of us are going back to heaven. It's a great mystery. That's why it's important that we always say, "I love you," to the special people in your life, because you NEVER know exactly when they're gonna go back to heaven.

Erin arrived, and Ali was on her way. I felt like we established a good groundwork in case Bella didn't make it today. So, when Bella left us, we decided Ali should be back with us to be with her baby sister. So, I called Erin back and she got Ali back within just a few minutes. I met her downstairs, and I took her to the meditation room on one of the top floors of the hospital. Ali had never been there, so I figured it would be the perfect setting to tell her the news.

When we walked in, Ali marveled at how beautiful the room was. It has a beautiful sky light of sorts, and I held Ali and said, "I bet that if we opened that window, we could see all the way to heaven." She nodded in amazement. Then I continued, "And we'd be able to see Bella smiling back at us. She's up there in heaven now." With that, Ali got it. She began to quietly cry into my shoulder. We hung out for a minute or so, then I asked her if she wanted to see Bella, and she said yes, so we headed to the room.

From this point on, the scene in the room was one of family, serenity, peace, love, nurturing, and just about the most natural seamless transition from this life to the next a family could hope for.


We took turns holding Bella in our arms, and we wept. A lot.


Ali began to immediately start to draw for Bella. She drew a portrait of Bella from her birthday. She then drew a picture of a horsy with wings for her. Ali just jumped right into it.


After a while, Ang and I felt like it was time to put Bella back on her bed and we decided to bathe her. It felt SOOO good to take off all her bandages. I took out all her lines, and returned her to her beautiful self. After taking off all her bandages and taking out her A-line, med line, central line, and trach, I left the G tube, because that might have made a mess, and I didn't really know how to empty the balloon anyway, so it was all good. Besides, she came here to MN with that, so she looked like her pre-transplant self.

Then, one of our primary nurses, Renee, who we were so fortunate to have on tonight, found us a really cute sleeper we could dress Bella in. So we got her dressed up and laid her comfortably in her bed with her latest Teddy bear friend. She looked so cute. Ali put cute little stickers on Bella, something she could never do in life. We eventually removed them, but they were cute.


Then, child family life came with a couple of books for Ali and a handout that had various ideas for end of life care. In it, a lot of the things we were already doing, but they had two really cool things, plaster molds of hands and feet, and finger paint hand prints. I told Andrea, who was just wonderful, that we'd like to do as many things as she had supplies for since we'd never get to do any of it again. Ali had SO MUCH FUN in this creative process. She helped out and was the best medicine in the room, bringing levity to the room with her hilarious commentary.


We made some absolutely AMAZING life casts that I'll share tomorrow; they are drying right now. We also did two really awesome hand and footprints with paint. I'll share those tomorrow as well.

At one point in the evening, Ali went to the playroom for a little bit, and Angelique and I had a chance to spend some private time with Bella. We got to say everything we needed to say to be complete, and it was just the most sublime moment of closure. We left nothing unsaid.

At about 8:30, it was time to say goodbye.

We tucked Bella under her butterfly blanket, and turned down the lights, put on lullabies, and said goodbye exactly the way we did every night. It was so natural. We came home to RMH, and had Renee call us when Bella was gone so we could come back and clean out everything after Bella left. Our friend Lisa (GOD LOVE HER) came on a moment's notice to hang out with Ali while we went back, got it done, and came home. Here we are, it's 12:53 am, and Ali is still running around like a maniac, and it's all okay.

Before I forget, in lieu of flowers, tomorrow I will post a chip in widget where you can make a donation to P.U.C.K., the charity raising money for this EB study at the University. Please, help be our partner in curing EB. We paid with Bella's life. Please chip in whatever you can.

Needless to say, our adrenaline is holding us up right now, and shock and numb will keep us going for a while. There is still so much to say about the journey. I am too fried to jump in this evening. Tune in tomorrow, and there will be more. The journey for Bella has ended, but the journey for us all continues.

How can we all make meaning out of this journey Bella has taken us on?

Now it's our turn, and when I say our turn, I don't mean Ang and my turn. I mean YOUR and OUR turn. Bella did her part, like no other.

What is your part?

God night.

369 comments:

  1. OMG NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO I cannot imagine your pain I am so sorry

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  2. I'm sorry. I'm sorry for your pain. I'm sorry she is no longer here. Though, I am rejoicing that she is, for the first time in her life pain free. She is with Jesus.
    She will be missed.
    But you already know all this.
    It's all I know to say.
    I am praying.
    Gabby from Wyoming.

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  3. Jack and Molly's NanaOctober 11, 2010 at 11:31 PM

    I am so thankful that you both were able to be with your baby during her final moments, and that you had such a lovely closure. And right now I am happy for not just Bella's peace, but yours as well. I KNOW you probably don't feel it now, but you will; you will. And please know that Bella's army will hold you in our prayers for as long as it takes, and longer. Bless you.

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  4. There aren't the words to say that will make it any better. Bella is no longer in pain and your pain will ease with God's help one day. My prayers for you to have the strength you need.

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  5. She endured more than most of us have to in a lifetime. What a hard journey it has been for Bella and your family. I wish you strength in coping with all of this and hope that, in time, you'll be okay. Goodnight, Sweet Angel Bella.

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  6. I am so so sorry for all of you.
    I am sending you all my love.
    Love Lolly

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  7. Oh my dear friends.
    I don't think any of us will ever have the right words.
    I was praying, when I read your facebook, that everything would be ok. I was also praying that if things WEREN'T going to be ok, that you would have peace with Bella...It brings me comfort to know that she was in no pain, with you beside her, and then in your arms.
    This little girl, this AMAZING little girl has touched so many people, in so many places.
    "They say that time in heaven is compared to 'the blink of an eye'
    for us on this earth. Sometimes it helps me to think of my child
    running ahead of me through a beautiful field of wildflowers and
    butterflies; so happy and completely caught up in what she is
    doing that when she looks behind her, I'll already be there."
    ~Author Unknown

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  8. "and when I went home, it went away"

    I am relieved for Bella to be "free" from EB.
    I am proud of what she did for others who will follow her...

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  9. I have no words to express what I want to say. Thank you for sharing your journey & Bella with us.

    Sending love from Colorado.
    Cathryn

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  10. Rest now beautiful Bella! Please take this time now to look after your wonderful loving parents and ease their pain. You have touched the lives of so many people with your amazing story. You will live on in the hearts of all of us. Tim, please continue to write and tell Bellas story to the world. You have all lived the most amazingly challenging 2 years... I wish you all peace and love. I pray that Bellas struggles will help find a cure for EB. My heart is will you all.

    Misty Bibb (Faith)

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  11. Love Love Love Love Love Love Love Love Love Love

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  12. I have an hole in my chest. A pain that hurts so much that I can´t even breath right.
    My tears are rolling down my face and I feel such a sadness...

    Tim and Ang, I don´t have words to console you. I just hope you will find the serenity and strengh in your heart to continue your journey without your beautiful Bella. Be sure that she will always watching for you and guiding you. Today Bella got her wings and flew into God's arms.

    Sweet Ali, you are now a big sister of an angel. Keep always that smile and joy. Through does Bella will continue to be remebered.

    Continuing my prayers for you, with my deapest gratitude for being part of Bella's journey.
    Carla, from Portugal

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  13. Oh Bella...

    Thank you for everything that you have taught me. Being a NICU nurse, I sometimes forget the whole other world of medicine that is out there. Thank you for opening my eyes to the world of BMT for EB patients. Thank you for helping me learn more about the PICU environment. Thank you for reminding me never to give up.

    As I sit here at my patient's bedside here in the NICU, I have tears streaming down my face. My roommates probably think I've lost it or something.

    Tim, Angelique, Ali - there are no words that I could say right now that will make this any easier. Just continue knowing that Bella had a wonderful purpose, and she served it with style and flair all the way through.

    Jess
    Chicago, IL

    (Ali - continue taking great care of Stuffy Gloom - he's one of the good guys!)

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  14. We are so sorry for your loss. Our condolences to the entire Ringgold family. Bella is looking down from Heaven smiling at her precious family. Thank you for letting us be apart of this journey.

    Love from California

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  15. Tim,

    Devastated.

    But inspired beyond words by the determination with which you all strode down that road towards a possible cure for Bella and for all children born with EB.

    There are no words to offer that can make things easier. But you describe your daughter's passing with such clarity, grace, focus and honesty that I stand once more in awe of your strength as a family.

    Bella's days, as you shared them with us, have taught me so very much.

    It's almost midnight - the stars here tonight are spectacular, the night is calm, after vicious storms all weekend. I am about to go out onto the deck and I shall look heavenwards and have a little chat with that little girl of yours, that little girl who has grabbed the hearts of so many of us.

    Tim, Ang, Ali - and Miss B - I send you every last ounce of fondness.

    From the rooftops, loudly, with sorrow, such sorrow and with all my love,

    Fondly, fondly, fondly, always,

    Jane in Vancouver

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  16. Oh,Ang,Tim and Ali, my heart is breaking for you, I am glad the process was a peaceful one and that you were able to be by her side. It brings me some comfort that she is no longer in pain and can now run and play with all the other little angels up in heaven.
    Oh sweet Bella, butterflys will always remind me of you sweet girl, go dance with the angels sweetheart

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  17. We all donate to the (mostly randonm) charities from time to time. Bella touched me so much that I have decided EB will be life-long charity mission. I am starting with the handknit mittens auctions through Debra. Love Bella's outfit, but I cannot look at the picture of her holding her teddy bear, I just cannot. I am sending you lots of love and condolences
    Love
    Molly, BC

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  18. Today Bella truly is saying, "Yeah, I was born with this rare skin condition, but when I went Home from the hospital, it went away!". There really are no adequate words. Bella touched my heart so deeply and has made me a better person. I weep for you, but rejoice that Bella is in Heaven without pain. I wish there was something I could do to take away your pain. How bad my heart aches for the loss of Bella in my life, even though I never met her or you in person. Thank you for sharing Bella and for letting complete strangers like me love your daughter. You make me want to be a better person, a better wife and a better Mom. I am going to go sneak into my girl's rooms and give them each an extra little squeeze tonight. I am glad Bella went peacefully. Hold each other close. I look forward to reading more about Bella's life and your family.

    With love from Castle Rock, CO,
    Kristi (and Josh, Karlee, Izabella and Olive)

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  19. Dear Tim and family,
    I am sitting hear crying. You must have JUST posted this. Thank you so much for having the strength to share with those of us who have been following Bella's journey.

    I'm so numb and sad.

    Maybe you can close your eyes and see all of us who have been part of the journey from afar standing around your family with candles. We are all sending you love and strength.

    I'm glad you were able to be there with her.

    I'm so sorry. I'm so sorry.

    Kim in California.

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  20. What a valiant and strong, beautiful and courageous girl was Bella. She got that from her incredible and faithfilled mom and dad and Ali. Her journey, and yours, is a true testiment to faith in the Almighty God and willingness to do good for those in need, particularly for those precious children with EB. You are all always in our prayers. May you feel the warm, comforting, and constant love of God who is caring you all through this. And may you feel peace knowing your precious little girl is in Heaven staring back at you and smiling and laughing, how you remember her, and no longer in pain.

    Love,
    the Modica Family
    Joe, Tiffany, Jeremy, and Rachel

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  21. My thoughts and prayers are with your entire family. I have followed Miss Bella's story for the past several weeks and have learned so much from all of you. I pray that you feel the love and support pouring out around you.

    Cathy
    Mommy to 3 in NC

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  22. Bella has changed me forever, I am so lucky to have been a part of her life. God bless Bella. God Bless the Ringgolds.

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  23. We love you all and we will love Bella, forever.
    Jen, Jim, K and N.

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  24. Tim, Ang, Ali,
    Wishing you peace, hope, love, strength. I am so sorry. I know your pain, many years ago I lost a little one. The first days are empty because your baby isn't there anymore, but you know, Tim and Ang, you never really lose them, you keep them right there safe inside you, and they are always with you. Bella was here on earth, and the heavens and the oceans heard her song, and now she is within you and she is still singing, and you will always have her. So you can walk along the beach and look at the sky and love the beauty around us and Bella is right there.
    I know it's no help when you're hurting now, but peace will come.
    I wish there was more to say. Just thank you so much for sharing your sweet girl, she is a part of the world forever.
    LiMH Switzerland

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  25. Rest in peace, sweet Bella. You fought long, hard and bravely, as did your wonderful dad, mom, and sister.

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  26. Tim, You and your family are beautiful. I have learned so much from the 4 of you. I see now where Bella got her strength from. You can see it in her eyes in her picture at the top of the page. Sheer determination. Was it a coincidence that she left us on day 101? It has dawned on me that she or God or both decided that she WOULD go home after 100 days. It gives me chills just thinking about that. And the fact that she waited for you both to be there... and the song. It was all in the plan.

    Although I cannot imagine your pain, I take strength in your strength. I even started questioning if there really is a God tonight, but the answer came as soon as the question finished... of course. God has a plan for us all. Bella and your family have endured so much, but thousands (you do have over 1000 friends on Facebook!) have learned to appreciate every moment, to look at the challenges of life a little differently, to hug their loved ones tighter, and to enjoy the beauty of butterflies. Because of you, Bella, tonight I watched my 4 year old for a long time as she slept, stroked her hair, kissed her forehead, and listened to the sound of her breathing... and thanked God for it. God bless you and your family.
    Jen from Colorado

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  27. Jessica in IndianapolisOctober 11, 2010 at 11:58 PM

    Like others have said, I sit here sobbing. My heart is so broken for all of you. What a wonderful job you did transitioning Bella from this world to Heaven. Your love for Bella, for Ali, for each other, and for the world is amazing. Bella was lucky to have you, and the world was lucky to have her. People around the world cry with you tonight. Who would have thought that a child I never met could have such an impact on my life? But your loss is heavens gain. The angels of heaven are rejoicing, the EB has "went away", and Jesus himself is dancing with Bella as he welcomes her home. Until the day you can all reunite, may God bless you with peace. You will all be in my prayers.

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  28. Oh tim, angelique, and Ali


    i am so so terribly sad to hear this news. I am so thankful that Bella had such a wonderful family here on earth that eluded Christ's love for all, and you are the true example of hope, love, and faith. We have been with you on your journey in spirit from day one. I still remember our chat at church when Angelique was ready to pop with bella, and she has carved a space in our hearts ever since. We are so grateful to you for sharing Bella's life with us, and we love you and your family. We will be continuing to pray for you all as you work through these next stages. This is such sad news, but it is a blessing to know that she is no longer feeling EB. Bella was loved by so many people and she was incredibly blessed to have such an amazing family.

    Thank you for sharing your journey, and what a journey it was.

    in Him,

    kristen and james

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  29. Yeah,I was born with this rare skin condition but when they bought me home from the hospital it went away. sweet Bella sweet Bella your skin condition is gone.Tim, Ang,your loss is far too great to put into words.your bravery to date is beyond believe. Dawn and family in Canberra Australia send our love and will continue to pray as you imbark on your LONGEST journey that is ahead of you. My love to Nanny Sheila.Go gently.

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  30. Dearest Tim, Angelique and Ali,

    My heart is broken for all of you. I cannot imagine the grief you must be experiencing, and my prayers are with all of you. Bella was/is a beautiful, sweet girl, and while I never had a chance to meet her, she quickly captured my heart. Praise God that she is not hurting ANY.MORE. Please know that you all are loved, and that God will give you His peace in the midst of this storm. I wish I had better words than this, but please accept my deepest sympathies.

    Love from TX,
    Laura (for Team A)

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  31. I'm so sorry ... and so amazed at the way you faced the situation. I'm glad you were there with Bella as you always were, as we were with our prayers and heart.
    Lots of love,
    Mariana, Victoria, Martin and Alex, UK

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  32. I am so terribly, terribly sorry. Words feel so useless but know that I am praying for you. What an incredible little girl.

    Bec xxx

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  33. Oh my sweet Bella Doll...I am completely broken...my tears won't stop and I can't even catch a breath right now. My last memory I have with you, is me kneeling down talking to you, making you smile, you making me smile, while holding the seat of the swing you were in @ Joan's house. When I think of you, I see those beautiful blue eyes smiling back at me. I will miss you dearly, but I am at peace knowing that you are dancing on the streets of gold, chasing butterflies. I can hear the choir of angels, rejoicing in their new beauty of an angel they received today. I have learned so much from you my little beauty, and I thank you for your courage and inspiration. I will carry my memories with you and cherish the days we smiled together. I love you so much and I can't wait to hug you when we see each other in Heaven. I promise to keep your Mommy, Daddy and big sis Ali in my prayers from this day forward. With ALL my love,
    nicole baca

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  34. I am so sorry for your loss. You have touched so many lives with Bella's story and my heart is aching for all of you during this time.
    You are in my thoughts and prayers.
    God Bless...

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  35. I'm so incredibly sorry, Ringgold family. Bella is truly free now from her pain and is healed. Now it is our turns to heal and to be grateful for all we gained by knowing her, and you. Our prayers continue for your family.

    SC Goodsons

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  36. Tim, Ang, and sweet Ali,

    I'm so sorry for your loss. I am so thankful that Bella's passing was peaceful and that BOTH of you were able to be there by her side. That she was able to take her last breath in the arms of her mommy. What a blessing that is. I am thankful to know of Gods plan for us and I know that she is now with God in his arms no longer in pain and with beautiful PERFECT skin. Heavenly Father has a plan for each and every one of us. His plan for Bella was to inspire thousands of people around the world and encourage them to turn to Him to Know Him. She was Gods little missionary. It is my personal belief that when God takes children, it is because they are such special spirits that he can't bare to be without them in heaven for too long. They are just too important. Bella is THE strongest person I know!! She is loved by so many...you are ALL loved by so many. As I have come to know your family and especially Bella over the past 4+ months, I have grown to love you and feel as though you are family. I am so inspired by your ability handle this love and understanding and without bitterness. You are AMAZING.

    I'm so glad that you both were able to hold Bella in your arms and give her all the love you have. I know she felt it. She knew how much you loved her. From the moment she was born into this world to the moment she left it, she knew how much her mommy, daddy, and big sissy loved her. She couldn't have asked God for a better family.

    Thank you for sharing Bella with us. And for allowing us to love her as you love her. Stay Strong.

    WITH ALL OUR LOVE,
    Amber, Craig, Malorie(2 1/2), and Liam(9mos)
    The McLaughlin Family
    Moreno Valley, CA

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  37. i have not even been able to read the story yet, but I just want to say how incredibly sorry I am for your loss. Bella is and was a wonderful little girl who touched many people in many places and she will always be remembered fondly. My heart is so sore - I cannot imagine how you must all be feeling. Thinking of you and praying for you all.

    Linda
    South Africa

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  38. I am so sorry. There are no words.

    Bella will be greatly missed.

    Thank you for sharing this with us.

    All of my love
    Kirstin
    San Jose, CA

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  39. Thank you for sharing sweet lovely Bella with all of us and allowing all of us to love her.

    God Bless

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  40. Oh sweet Bella! Rest easy now you are in God's hands!You will be missed but you will not have EB anymore.

    I am praying for your Amazing, and Awesome family!

    Becky (Texas)

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  41. Again, we are so sorry...and sad. I believe Bella has gone straight to heaven where loved ones that passed on before her welcomed her with loving embrace. And she will be there waiting for you someday like another said, "in the blink of an eye"

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  42. I read your post and cried - for you, for your beatiful Bella...
    No words can comfort you and you don't need much comforting right now. You are under the shock yet and need rest from the exhausting days in the PICU.
    Sending you hugs and love!

    Bella, little sweet sunshine, you are pain free, drug free, machine free now. Be happy, big soul, we love and remember you. You did great and your journey was glorious. Love you, baby!

    Elena

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  43. Beautiful Bella,
    You did so much good during your short time here. Thank you for teaching, thank you for sharing, thank you for being so courageous and generous and absolutely B.E.A.U.T.I.F.U.L.
    Love to your whole family, Tim, Ali and Ang, our thoughts and love are with you as we all celebrate Bella's life and learn to live with her absence.
    Love from Ashley and Edie, in Yakima, WA.

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  44. Dear Bella,

    What an amazing journey! Most people live many decades without having a life purpose as clear and as ambitious as yours. You changed lives, you brought people together, you introduced us to your fabulous and hilarious dad and your lovely mom and your precocious sister...and you did it all in such a selfless way.

    I know they say that we can never even imagine what heaven is like because those of us here on earth don't have the capacity to understand how wonderful it is. It must be wonderful huh? I bet you already have so many friends and people that were so excited to greet you and welcome you home. What's going on up there? Did you have a big party? Please send your dad and mom and sis strength and love and smiles until they get to meet you up there. The world won't be the same without you. God is lucky to have you up there.

    KT in Austin

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  45. heaven now has the most beautiful sweet bella angel with her butterfly wings. prayers are being lifted up for sweet bella, angelique, ali, and you....what a wonderful family.

    god bless y'all
    susan
    w-s, nc

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  46. Tim, Ang, and Ali,
    I am so sorry for your loss of beautiful Bella from this earth. Through my tears I am picturing two Beautiful Butterfly Angels, your Bella and our Leah, they are free of all the pain of EB. No more bandages covering their fragile skin, no more trachs providing them a way to breathe, those things were needed while they were here on earth, but they are free of their earthly constraints, and of the pain of EB. Bella has changed so many people's lives for the better all over the world, and I believe her story will continue to have a profound impact on people and how they interact with their loved ones and God, for a very long time. Bella's skin may have been fragile due to EB, but her spirit, her soul, was and is, amazingly strong and powerful. Bella will be missed, loved and remembered, by her family and friends, and also her" internet family" from around the world.
    Praying for the Ringgold family in Bowie, Maryland, Judy Turnquist (Angel Leah's Grandma)

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  47. I am so sorry to hear about the passing of your little girl. She was a beautiful little angel and I know that she is watching down on all of you at this moment. Heaven sent you a wonderful daughter who taught so many people. I never knew her but from reading the blog she taught me how strong one person can be in times of trials and hard ships. I am praying for you all in this diffcult time.

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  48. I am so sorry for your loss.
    I am so glad I could follow Anabella on her journey,she changed my life so much & I will carry her in my heart
    Heaven is so lucky to have her

    You are all in my thoughts and prayers

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  49. I just stumbled into your lovely corner of the web on Saturday and literally spent the entire day reading your amazing journey... somehow I didn't have time to post a comment and figured out I would do it a bit later. I wish I would have been faster... I'm just so utterly sorry.

    I carry your heart with me

    I carry your heart with me (I carry it in
    my heart) I am never without it (anywhere
    I go you go, my dear; and whatever is done
    by only me is your doing, my darling)
    I fear no fate (for you are my fate, my sweet ) I want no world (for beautiful you are my world, my true)
    and it’s you are whatever a moon has always meant and whatever a sun will always sing is you

    here is the deepest secret nobody knows
    (here is the root of the root and the bud of the bud and the sky of the sky of a tree called life; which grows higher than soul can hope or mind can hide) and this is the wonder that’s keeping the stars apart

    I carry your heart (I carry it in my heart)

    E.E. Cummings

    All the lovely wishes from Germany (originally from the frozen Finland)

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  50. Dear Bella
    You are Home and it has "gone away". I think we all come to earth with a mission and you completed yours with grace, bravery, fortitude and love. We all were touched by you and I will remember you to the end of my days. When I want to give up, I will remember a little girl with silly socks and I will gather strength from her. I am so sad for your mom and dad and sister and I am praying for peace to flood their hearts and to know that God has them in his embrace. Love prayers and hugs to all the Ringgold family

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  51. I have no words ... but it has comforted me when my mother went to heaven, was knowing that God chose to take him along, good people and with great force to help him. Unfortunately for us, are the people we love most ... of Portugal will be my sincere condolences ... I remember the force with which Bella lived his life and make it an example.
    That God eases your pain.
    Paula Anselmo, Barreiro - Portugal

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  52. My heart is aching for your family. I am so, so sorry. Just heartbroken.
    I find it important to tell you that I am astounded by the faith you have shown throughout Bella's struggle; it's all very humbling. I recently had the misfortune of watching my friend's son die from a rare genetic disease at the age of six months - and, while everyone is entitled to their own grieving process, I'm just in awe of the difference in your reactions in comparison. I detect no bitterness on your part - only trust in God's plan, a grateful heart for the blessing of knowing and loving Bella, a desire to honor her by looking for the lessons her precious life has imparted and honoring her memory by continuing to seek out a cure. Honestly...just so humbling. God Bless you and comfort you in your pain. You will remain in my prayers and Bella, as well as your entire family, will always serve as an inspirational model of strength, faith, and love to all whose lives you've touched. You have taught each of us and we will never be the same.

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  53. I am so very sorry for your loss. My heart dropped when I started reading.

    I'm thankful that you found peace in the end. She was a beautiful girl and did many great things in her short life.

    Peace to you all.

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  54. How beautiful it was that Bella held on for both of you to be with her when she passed away... in her mother's arms, hearing her father's music. My heart is broken that Bella is gone, but it's comforting to know that she's no longer suffering.

    The one statement from your post that keeps repeating in my head now is "She's not done." Although Bella is no longer here on earth, I believe she'll live on for many years through EB research. Think of all the children who'll benefit from her experience. Equally important (for me), is that she'll live on in the hearts of all of us who *knew* her.

    Tim, for those of us who live hundreds of miles away and weren't able to meet Bella in person, thank you for allowing that to happen. Through your written words and photos, we were able to get to know "our" sweet Bella. We couldn't have done that without you.

    I'm glad you removed all of Bella's bandages and tubes tonight, gave her a bath, and held her in your arms... how freeing and comforting that must have been. Holding her as you never could before.

    Bella, we'll never forget you, your beautiful blue eyes, your strength, your spunk, or your fabulous socks of the day. You've taught us to be grateful for what we have and the importance of helping others who are suffering. Our part in this journey will be to support EB research so that a cure can be found.

    Tim, Angelique and Ali, we wish you serenity, peace and love in the days ahead. Bella will always be with you...and with us.

    Bonnie, Brett & Sidney Hart

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  55. Tim, Ang and princess Ali,

    I'm shock ...my tears are rolling down my face...

    Thank you for sharing Bella with me and allowing me to love your sweet Bella.

    I will always remember her ... Today sweet Bella got her wings

    Love
    Sandra from Portugal

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  56. Oh Bella...
    I am really sorry for your loss.
    God bless you all.
    Love,
    Sandra (Azores)

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  57. There are just no words... nothing I could possibly say...
    I am in tears for precious Bella - a little girl I never met but who touched my life and had such a great impact on me.

    Tim, Ang and Ali - you are all in my thoughts and prayers...

    All my love,
    Allie
    (from Australia)

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  58. I cannot imagine your pain.
    I am really sorry for your loss.

    May the Sunlight be with you always.

    Love,
    Maria.

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  59. I'm so so sorry. I've been following Bella's journey for months, can't believe she's gone.
    Rest in peace, sweet Bella, hope you're dancing with Angels up in heaven. You have touched the lives of so many people.
    Thinking of you all.
    Martina, UK

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  60. Tim, Ang and Ali
    My heart is breaking for you tonight.
    Hold each other close. Bella will forever be your guiding Angel.
    Love to you all
    Shana
    (Australia)

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  61. oh wow, I've followed your story from the beginning of transplant but only commented a couple times. Your family's faith is priceless. You bella was priceless. This journey has taught me so much about faith and life in general. About how sometimes we just have to "let it go and let God."
    Rest in peace, Miss Bella. May you dance among the stars. Tim and family--I'll continue to keep you in my prayers for the days, weeks and months to come.
    Lexie
    Arkansas

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  62. Tim, Angelique and Ali,

    I am so sad for for your loss, but so happy that you were able to be there for her before she entered into eternal rest. She would not have wanted it any other way, you were there for her every waking moment when she needed you most and then she was there for you when you needed her most. Your family, your journey, your strength has moved me over the past 2 months more than I could even imagine. I can't fathom what you are going through right now, but know that your faith, love and AMAZING strenth will get you through it.

    I found this quote a couple of weeks ago when my best friends father in law passed away. I love this:

    When someone you love becomes a memory, the memory becomes a treasure. ~Author Unknown

    Darcie in CT

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  63. There really are no words. I'm so saddened by the loss of Bella today, but relieved that she is now in heaven pain free! I've learned how to really love from following Bella's journey. Thank you for allowing all of us to be a part of your internet family and sharing Bella with us. I admire your family's strength, love, compassion, and perseverance.

    love from Kansas
    Darci and Jack (16 months)

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  64. Tim, Ang and Ali, Spencer and I are very sorry to hear this news - and both in shock. It sounds like you had a wonderful ceremony for her with your family - very beautiful. She couldn't have asked for better parents. And now she has went to meet the Father, who will care for her until you join her again. I think its marvelous how Ali understood heaven and where her sister was going. That's beautiful! She will be well taken care of. I am glad we have been able to meet your wonderful family and share in Bella's journey. Hopefully we can get together soon and share in a celebration of Bella's life.

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  65. My heart is breaking today.. We all love you Bella and your family.. Tears is about all I can say.

    Christy in Mount Gilead, OH

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  66. Dear all,

    I was devasted to read this post and I hope you can find blessing and solace in that Bella touched an enourmous amount of people in her life. We are all blessed to have been able to follow her and you on this journey - I wish the ending would have been that she could have gone home with you...but know that I believe she has gone home...

    Bless you

    Emma
    Sthlm, Seden

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  67. Dear Tim, Ang, and Ali,

    I started writing a note to Bella last night, but as our oldest dog is close to earning her own wings, I didn't get very far.

    While I am so sorry to read about Bella, I am sorry for you, not for her. Having sent our third baby back to heaven (courtesy of a different genetic nightmare), the one thing that keeps me sane is that I KNOW Jeffrey is happy and healthy - for eternity. His 13th angel anniversary is coming up soon, and I feel confident that he is on Bella duty with a beaming smile on his face. I don't doubt that she has one on hers as well!

    I know what lies ahead for you, and for that I am beefing up the prayers. However, in the midst of the indescribable grieving process, your sweet Bella will be your shining light in heaven (probably already making plans to take care of YOU!), while Ali will be performing her magic on earth. She will help keep you upright as only Ali can :)

    It has been pure joy to get to know your family through Bella and to share your story with others. Your loving care of Bella, intense determination to keep the doctors focused, humor and determination to keep things as 'normal' for Ali as possible, and unwavering faith have drawn quite a following for updates. And you - and Bella - are not nearly finished.

    To Bella, what an honor it has been to meet you and watch you fight through untold challenges provided by EB and BMT. You changed your family's world the moment you arrived, but little did they know you would change the world for so many others as well during your brief time in your fabulous earthly socks :)

    Bella, together you and the others in the EB family we've grown to love (Jonah, Tripp, Daylon, Elle, Leah...) have taught us not only about EB but also grace, courage, and finding joy just about anywhere.

    Be sure to send your incredible family lots of signs!

    Sending big hugs and prayers from the mountains of North Carolina -

    Helen/'Lucy'

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  68. Angelique, Tim & Ali,
    Typing through tears of sorrow to offer all my prayers for comfort & strength. I know Angel Bella will be watching over you and helping you all to heal.

    Bella has showed me just how precious life is - even when life is hard and not going the way I want it to go. That I should never ever take it for granted. That my minor suffering is nothing compared to all the major suffering in the world. She has taught me strength is not in your size, but in your heart!

    My 13 yr old Rebecca sits beside me concerned for your well being and missing sweet Bella. It is hard to explain, but she has also been moved by Bella and shared her story already. I think Bella's power will be in the sharing of her amazing story of strength.

    Love & support,
    Tian, Mike, Rebecca & Olivia in NJ

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  69. Dear Tim, Ang, and Ali,

    I started writing last night, but as our oldest dog seems close to earning her own wings, I didn't get very far.

    I am so sorry to read about Bella, but not for her sake. Having sent our third baby back to heaven thanks to a different genetic nightmare, I still thrive after almost 13 years on the comfort of KNOWING Jeffrey is safe, healthy, and happy for eternity.

    I also know what lies ahead for you and have begun beefing up the prayers.

    It has been an honor to get to know you through your sweet Bella and share this very special story. I apparently can't go into much detail (the comment I just finished was tossed for being too long!), but the grace, courage, joy, humor, tenacity, and unwavering faith you have demonstrated throughout these past grueling weeks will impact many more folks than you'll ever know.

    Although Bella has tossed her fabulous earthly socks for official wings, she is hardly finished! Be looking for signs :)

    Sending big hugs from the mountains of North Carolina -

    Helen/'Lucy'

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  70. Oh TIm, Angelique, and Ali,

    I am so sorry to have read this update this morning. I cannot imagine the pain you are in this morning, but I know Bella is looking down on you. You loved that little girl more then anyone can know and the care and sties you made in helping her are evident in your loving pictures and posts.

    In Judaism we say Baruch Dayan Emet - Blessed be the truthful judge. God always knew what Bella was here on earth for. She has taught so many people SO much and I know I will forever be grateful for the lessons taught by your amazing daughter.

    As you leave a person who has just lost a loved one in Judaism you say:
    "HaMakom yenachem et'chem..." "May the Omnipresent comfort you...'"

    I hope you will find comfort in the wonderful memories you have of Bella.

    With a sad heart in Boston
    Tamar

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  71. Hi Bella

    You are an amazing and brave girl. You have touched my life. You taught me how to be brave and to live to the fullest each day.And to treasure everyone that i love. You have done proud to yr family.

    It's my honour to know your story.
    Rest in peace, Bella

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  72. Rest in peace, Bella.
    All the best from the reader in Finland

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  73. Sweet Bella,

    Our days have been defined by your days - we carried you as best we could. Our lives have been on hold waiting for yours to begin again. And so it has. We rejoice in your healing. We are comforted knowing you're home now - awake and whole in your Heavenly Father's arms. And we hear your promise to us - 'I was born with this rare skin condition and the world prayed for me and cared for me. Now, I will spend my Heaven praying and caring for them.'

    This day we begin anew - our walk towards you - the day we're reunited for eternity. We'll miss you!

    Love,
    Aunt Mary

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  74. I am so very sorry for your loss. Beautiful Bella has finished her wonderful work here on earth and now will be waiting for her family when its time.

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  75. Oh my goodness. I am SO sorry. What a beautiful story, even if it did not end the way we had hoped. Anabella has touched me, and my sons, and we will never forget her. I pray for peace in your hearts. I pray the the Lord lift you up and wrap his loving arms around you in this difficult time. May you have the peace that passes understanding and hope that continues through the dark times until the sun shines once more.

    With Love,
    Susan in Pittsburgh

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  76. Bella is so beautiful and so peaceful.

    My heart just broke in two. Oh Bella, I never met you, but I love you so. I sat in the bathroom at work, sobbing, after I first read this and the tears have continued to flow throughout the day. I am glad that you are finally pain free, but I so wished that you could have stayed here on earth with your family a little longer.

    Tim, Angelique and Ali, words cannot express the sorrow I feel today. I have followed Bella’s journey over the past 100 and a bit days and her strength and yours have amazed me. There are a lot of things in this life that I cannot understand, and why Bella had to leave is one of them. Keep holding on to one another and to God; may He give you the strength to carry on through your pain. I will continue to pray for you.

    I am so, so sorry.

    Much love!
    Annalien (South Africa)

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  77. Praying for you - Bella will certanly be missed.

    Victoria, Georgia

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  78. Words cannot describe the shock and sadness and loss that I feel this morning.

    It has been a privilege to share in Bella's courageous journey, if only through prayer and thoughts across the miles.

    Thank you, Tim and Angie, for sharing your precious daughter with all of us.

    Amy from Texas

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  79. Words can't express the sadness I feel for your loss. Bella was an angel on earth who touched everyone in her path (even those she never actually met, like me). Now she gets to be an angel in heaven with no more pain. Bless you all...you will be in my prayers.

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  80. I cannot find the words... I'm just so so sorry. But glad that you got such a beautiful goodbye. Tonight I will light a candle for Bella, for you, for Ang and Ali.
    "Blessed are those who mourn, for they shall be comforted" (Matt. 5:4)

    She is no longer in pain, she rests in peace.

    With love
    Jennifer, Sweden

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  81. Tim, Angi and Ali,
    My heart is breaking for you right now - I love Bella and will miss praying for her. Please know I will be praying for you, it is wonderful how you explained going to Heaven to Ali, I shall treasure that.

    I'm going to think of Bella, dancing with Jesus, sitting on his lap and asking Him to hold you tight.

    I will continue to follow the blog, praying for you as I continue to pray for the other EB kids who are so bravely fighting this horrible disease.

    I can just hear Bella saying, "Yeah, I was born with this disease, but when I came home from the hospital it was gone!"

    No more pain for Bella, sweet baby girl.

    Praying for you from Waterford, MI
    Kim Mahan

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  82. I read your post prior to going to work this morning. I was praying on my way in and I was comforted by remembering your words...Bella was born with a rare skin condition, but when you took her home she would be healed. I know she didn't go to the home you had planned, but she is home and she is healed. I am praying for you and your family.

    Ashley

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  83. Tim, Ang, Ali - I am so sorry. Bella fought long and hard, and you all fought along with her. She has earned her rest well.

    Sending thoughts of love and strength to the three of you.

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  84. She is now in the arms of Jesus. She never gave up fighting and you never gave up fighting for her. May you find comfort in the fact that she is finally pain free. And may God wrap is arms around your entire family during this horrible time of grief! I will continue to pray for your family that Bella watch over, all of us.
    With deepest sympathy!
    Amber
    Humboldt, IA

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  85. Ringgold family,

    Words can't describe how sorry I am for your loss. I was crying as I read about the events of yesterday... tears of sorrow about the end of a life and tears because I was touched at how peacefully, how poignantly that life here on earth came to a close. Now Bella has shed her body from earth and is in heaven, playing like she's never played before, in no pain. Although I am still crying, I smile when I think about that.

    Although I never had the opportunity to meet Bella, she and her incredible journey have helped me find God in the ordinary at a time when I had lost my way. Thank you for telling Bella's story as faithfully and consistently as you did, Tim. Her story has touched thousands and thousands of people across the world, and as I read the comments I think about how Bella brought many, many people close to God, and what an incredible gift that has been for us.

    Love to your family!
    Stephanie
    Houston, TX

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  86. Hi Angelique. I know it's been a long time, but I just had to let you know how sorry I am for your loss. I will keep you and your family in my prayers.

    Denise Mundine Beatty

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  87. Having been through the same thing recently you'd think I'd have the 'right' words to say ... but I don't. There are no words.

    You know you have my condolences - you know you have my sympathies - you know you have my prayers right now.

    But bereaved parents share something more; a piece of their heart that hurts too much to carry around alone.

    Bella and Leah: I know you are enjoying heaven together today.

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  88. I am so sorry for your loss and will continue to pray for all of you.

    Blessings from WA.

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  89. I am so sorry. I feel so sad and drained just after reading your post and I cannot even image the feelings you are having now.

    My thoughts and prayers will always be with you and your family.

    I never gave up on Bella and even now I never will. She brought a whole world together in some form of prayer. I will never forget her, she will always have a special place in my heart.

    Love always!
    Janel in Florida
    RDEB-35

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  90. Precious Ringgolds,
    I am so deeply saddened for your loss. I will never ever forget the wonderful work that Bella did while on this Earth. I am comforted in knowing that Bella is completely whole and healed in Heaven and that you WILL see her again. It is those of us left behind that deal with these human emotions. Remember, God is still the same today as He was yesterday. Nothing has changed with Him. He loves all of you dearly.

    Thank you so much for sharing Bella with the world.

    with love,
    Mindy
    Cumberland, Maryland.

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  91. though my heart aches for you..a sense of peace is also there. Peace for Bella..an angel put here on earth to make those believe again in hope and prayer and bringing those together who might never be...may Bella find the joy of no earthly pain now..may she fly high with the angels and sore her wings and smile down at each of us whose lives she touched. I know I will be a better Mother because of Bella. I will find the patience I need and see the joy in each day. Thank you for sharing your daughter with us. May you find comfort in these words and the words of thousands who found God again thru your journey.
    God Bless you and your family and may the EB world learn from your Bella.
    Mia Fandel Decatur Ill

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  92. So sorry for you loss. My thoughts and prayers are with you during this diffcult time.


    With a heavy heart.

    Donna
    From Wrightstown, NJ

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  93. What an awesome way to go to heaven--in such peace with you guys. My heart breaks for you thought as i know you would love to have had her here longer. She made a big impact on the world, and you should be so proud.

    I will pray for your strength.

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  94. We only knew Bella for a short time but she will live long in our hearts. Thank you for sharing her story with us.

    My thoughts and prayers are with you

    Laura
    Philippines

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  95. Sweet Bella rest in peace. My thoughts and prayers are with your family...Thank you for sharing her amazing story with us. You have taught us all so much, and she will remembered by so many people. You should all be so proud of what you have done to help the other children who will also make this journey.

    With much love -

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  96. My prayers and thoughts are with you and your family. Who knew when I met you while we were both working the AMTA registration table in San Diego and went to your session that God would use your precious family to touch my life. Praying God's peace will envelope all of you. I'm thankful for the impact Bella's short life made on me and so many others.
    Lori Parker
    Batesville, MS

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  97. Thank-you for sharing your beautiful family with us. Bella has touched us all in so many ways. I am sure that Bella is dancing in streets of gold today in perfect health and happiness for that I am grateful. We will continue to pray for your family.
    Tiffany - TX

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  98. Thank you for allowing Bella to touch my life.

    Scottie
    Cairo, ga

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  99. I only knew Bella through your blog and unfortunately never commented before. I am so sorry for the loss of your beautiful daughter Bella. God Bless you and your family. Sherri

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  100. I am so sorry for your loss.

    God rest her soul.

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  101. Tim - I'm so grateful that you shared yesterday's events with us so thoroughly. You gave us much needed closure. Thank you also for giving us all the gift such an intimate story of faith and determination. You made sense out of something that seemed so random and senseless. Bella's short journey here was a powerful one because of the meaning you took from it.

    I'm hopeful that, by the time you read this comment, you and Angelique will have had the chance to get a very good night's sleep. I can only imagine how exhausted you both must be. What a blessing to have Ali there with you to keep you keepin' on.

    Love and sympathy,
    Angela Ulrich
    Dublin, Ohio

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  102. Thank you so much for letting us be a part of your lives. There are not words to say how sorry I am and how sad.
    Rest in Peace Bella.

    Lisa Gavigan
    NY

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  103. My heart is so sad for you. Bella truly came into this world with a mission. Has any little girl brought so many people together and touched so many lives in such a short time? You are a very special family and have shown thousands of people how you can survive difficult times. Not only have you survived, but you have changed countless lives by sharing your faith, determination, dignity and love with so many people. When we met at the Falls, I wondered...were they supposed to meet us or we supposed to meet them...because our meeting was no accident. I now know, that we were supposed to meet you. I never got to meet Bella, but she and your family have a place in my heart that will never be filled by anyone else. Take care and know that as sad as we are today, Bella is not.

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  104. Beseeching God for His comfort for you and praising God that Bella is now truly free in her savior's midst.
    Thank you for sharing her incredible journey with us!

    Sarah
    Minneapolis

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  105. I am so sorry. I am so sad for you today. Everything I could or would want to say has been said. Losing someone you love is so hard, that there aren't really words that can comfort sometimes. You guys have amazed me with your strength and I am so glad you got a peaceful ending with your baby girl. I'm sending you virtual hugs, because when my mom passed, that was the only thing that made me feel better. Spend lots of time with each other, remembering sweet Bella. That is what makes the transition so much better. Your family has touched my life in ways I couldn't have imagined. I hope you will continue blogging and let us know how your family is doing.
    Much love,
    Memory-Texas

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  106. Sweet Bella you are so missed already. You fought a long hard fight and you really showed those Doctors a thing or two. So many people were touched by your short life and there is a whole community of people who know about EB that would without you, never know. We will continue to fight for you Bella, and for other EB kids.

    I am so sorry for you loss. My pain is not your pain but I am hurting for you today.

    Love from Dallas.

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  107. I'm so sorry you had to say goodbye to your beautiful Bella. Thank you for sharing her amazing journey...and the life and spirit of your sweet daughter. I am weeping with you this morning...and will continue to pray God's comfort, peace, and grace over your family...

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  108. Thank you for letting us into your life and sharing your time with Bella with all of us. I miss her. May God care for you always and give your family the strength and courage to live and love some more. Love and tears,
    Laura Valetutto
    Germany

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  109. I don't cry much at my computer, but you have tears streaming down my face. I can't imagine what you must be going through, but the way you did it was truly beautiful.

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  110. I'm so sorry... I just cried when I read this. I really wasn't expecting this to be the next update. Thank you for sharing these moments with us. I am so thankful they were peaceful moments to say goodbye, at the same time, my heart is breaking for you! WoW. What a healing, sweet Bella! I so look forward to meeting you in Heaven! We love you sweet girl and we will join the fight to help others who have EB!
    Much love, Michelle
    Houston

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  111. Dear Ringgolds,
    Our heartfelt condolences go out to you. Bella is an amazing soul that will live with us forever.
    All our love,
    The Gleason's

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  112. Fly with the Angels dance with the stars, beautiful Bella.

    Sweet dreams xxx

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  113. We are deeply sorry for your family's loss Tim! ...these words seem really inadequate right now. Thank you for sharing Bella's story. It has helped me to become a better person. You and your wife are incredible examples of being super parents. You all are in our prayers. ...I'm glad that Bella is pain free now in heaven but I'm sad she is away from her family. Russ F. & fam.

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  114. We are very sad that Bella is no longer with us. All of your family's strength and faith is amazing and truly and inspiration for all of us. Your little girl brought an entire community closer to God. We will keep you all in our prayers.
    Love & Prayers
    Russ, Jen, Cody, Casey, & Celeste

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  115. Bella may you sing your song with the angels, and smile down at your family. Bella I am so happy that you are with out pain. I know you hung on for so long because of your Mommy, Daddy and sister's love. I gathered from the posts last night that you had gone to heaven, but it was confirmed by my dreams of you last night, this morning before I even got on my computer I just knew. Baby girl you gave it such a good fight, I hope that we can continue your work.

    Tim, Angelique, Alli

    Words can not express the gratitude I have for your family. Because of your blog and sharing Bellas wonderful story, I have realized you can take nothing for granted in this life. I have two boys of my own, 2yrs and 4 months. Every second with them is a miracle I will cherish. I am sitting here with tears streaming down my face loving a child I have never met and feeling the grief of her passing and for her family's sorrow.

    Thank you for sharing Bella with the world. I don't know that I could have your strength and fortitude through all this. I'm so happy that the two of you got to hold Bella on her way out of this world. I continue to send my love, strength and prayers to your family, may it help with the healing.

    with love

    Lisa
    Houston, TX

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  116. Sweet Bella, I am sitting here crying and numb as i read this post. You taught me so much during this time and I am so sad that you had to go but you can really say now "when i was born i had this rare skin conditions but when i went home it went away". I know you are in heaven with God and his angels. Please send some strength to your parents and sister so they can get throught this difficult time.

    Tim, Ang, and Ali, my most heartfelt condolensces and I know that nothing i can say will take away the pain. I will be praying for peace, serenity and strength for you all. And thank you for remembering us at a time like this and letting us know what happened!

    Love always,

    Gwen from New York!

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  117. Dear Ringgold Family,

    I just got home from a trip out of town. The very first thing I did when I walked in the door was to check Bella's blog. To read of her passing was a shock. Yes, she was a sick little girl with many trials ahead of her, but to me, in my heart, she was very much alive and well. Her spirit shone like no other. Rather than go on about how deeply saddened I am, and the amount of tears I have cried for little Bella today, I will instead offer my condolences, and let you know that Bella profoundly changed my life like no other. This little girl, from her hospital bed half of the country away taught me to love as some people in my real life never could. I will forever cherish her, and her memory. Please know that she was and continues to be loved by many. My hope is that you will all be able to heal from your broken heart as quickly as grief allows, and that you will be able to feel the love of us, your faceless internet family, wrapped around you in your hour of need.

    Thank you for allowing me to take part in this journey with you.

    Love and Gratitude,

    Sherri (no longer anonymous)

    Ocala Florida

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  118. I am so sorry for the loss of that sweet precious little girl. I thought of Bella all day after I read your miday post. I will continue to think of Bella and your family and will check in on your blog daily. RIP sweet sweet BELLA!

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  119. Tim, Ang, and Ali - You are in my thoughts and prayers. I am so saddened that Bella lost her fight. She was a strong little girl and held on for so long. My heart hurts because of the pain she had to endure. She is safe now... free from pain.I will continue to pray for your family a you go through this time.

    Tracy in Milwaukee

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  120. Dear Tim, Angelique, and Ali:
    I have a heavy heart today. You guys are light years ahead of me in terms of finding the positive and I am inspired by your strength. I am thankful that Bella passed peacefully and that you were all there to say goodbye. I am thankful that you were given amazing opportunities yesterday and I know those memories, and the pictures, and her hand/foot molds, will bring you comfort for years to come.
    I grieve for Bella, an amazing little girl I never met, and I believe that I am changed for the better. In the not so distant future, I will be a pharmacist working with sick children. I will honor Bella's memory by putting family first when it comes to a child's medical care. I will listen to their parents, no matter what, and treat them respect and love. Last, I will never, ever give up on a child, because they thrive on hope.
    I cannot imagine the pain you are feeling and hope you can find some comfort in these posts. Know that Bella changed the world in a big way.
    Love, Lisa

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  121. Just got home from work, and had a chance to read through everything with pictures included (the pictures don't load on the computers at work). And once again, there are tears streaming down my face. I don't have any more words to say right now.

    Be at peace with your butterfly wings Bella.

    Jess
    Chicago, IL

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  122. I am so sorry to hear of Bella's passing. Thank you for sharing her with us. Your family's strength and faith are remarkable. I cannot imagine how you are feeling now but know that so many people are praying for you. Your faith and unwavering devotion to your family and to God have taught me alot. Bella is now painfree and at peace. I wish you comfort and many signs from heaven from your sweet Bella as you wait to see her again.

    Colleen in NJ

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  123. I am so sorry. I logged in this morning and gasped when I saw Bella's pictures with the dates. There are no words that I can say. Bella will be in my daily prayers and thoughts as she has been for months. Her journey has been remarkable. God Speed sweet Bella.

    Hugs and prayers go to to all of the Ringgold family.

    Amy in MN

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  124. Although I have never met Bella, I cried this morning reading your post. She is a precious angel of God now. I pray that you will know God's utmost comfort and peace during this time and in the future. Bella inspired me every day!

    Valerie
    North Carolina

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  125. My words will not be able to convey how heavy and saddened my heart is. While I know the right this is to say that Bella is pain free and I should be rejoiceing because she is an angel of God, I am, instead, selfish and asking why, and I want Bella back. I truly can not imgaine what you are going through. My prayers are will you and lots and lots of love.

    Mary, Jeff, Lainey, Nick, and Gabe
    Omaha, NE

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  126. Beautiful Bella and her amazing family,
    I have been out of town the past few days, turned my computer on this morning and went straight to the blog to check on this precious little girl. I am so so sorry for your loss. She was such an amazing and strong little girl with the best parents. God has a plan, as hard as it is to understand right now. I am in tears as I type this comment so I cannot imagine the pain you are feeling right now. Thank you Bella for all you taught me and so many of us. You will always be remembered. Fly high sweet angel. In my prayers always,
    Kara, NY

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  127. My heart breaks hearing this news. At the same time, I rejoice knowing that Bella has brought so many people into God's kingdom. What greater purpose is there? And now she is resting in the arms of Jesus. Praying for your continued peace and comfort.

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  128. Tim and Family:

    My heart is breaking for you and your family.

    You know I have been following and praying for you guys from the beginning....I am still praying for you guys.

    I'm so sorry the outcome didn't turn out with Bella being cured. Bella fought the good fight and God had another plan.

    Now I am praying for you guys to be at peace.

    RIP sweet Bella....

    God Bless your sweet family,

    Tina in Texas

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  129. My heart is so heavy for you all. I'm praying for your peace and comfort, and know that Bella is smiling at us from above.

    Sending lots of love, love, love,
    Kim from NC

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  130. Dearest Bella
    We love you! Thank you for the lessons your life has meant to us! Be in peace and continue to watch over us all! ...Beautiful Bella you live in our hearts!

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  131. Lynne, Bob, Jack and BenOctober 12, 2010 at 6:41 AM

    Bella -- You were with us for such a short time, but you created more in the world than most people could do in three lifetimes. You taught us about love, about strength and about faith. We have no doubt you will continue to teach us. You were and are a miracle.

    Tim, Ang and Ali - Thank you for sharing your journey with us, and know that we're still on the journey with you. We are crying with you, holding you in our arms and sending you strength, healing and peace. Most of all, we are sending all the love we have. Please tell us what you need. We love you.

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  132. May your soul be blessed
    May your body rest
    On the mountain where you were born
    May your spirit soar
    Where there's joy evermore
    May you find your way in peace

    Where there's no more harm
    In your Savior's arms
    See you fly away in the sky
    Did you hear the call
    Of angels one and all
    May you find your way in peace

    May you know your loved
    May you shine above
    From the mountain where you were born
    May your spirit soar
    There's no pain anymore
    May you find your way in peace

    ~Eastmountainsouth

    I sang this song at my great grandmother's funeral yesterday, the same day that Bella went home. I believe that my grandmother is up in Heaven looking down on the family that I know she loves dearly and is smiling and so happy to finally be home. Her life has been such a gift to so many in the nearly 104 years that she was here with us. We learned from her as a family about life, about love and about God's grace and how much He loves us. And I know that I will continue to learn from her even now that she has gone on to Heaven. 104 years. She touched many people lives during her time here. Bella, likewise, has touched the lives of countless others. She has taught us all lessons about life, love and God's grace as well. We don't understand the ways of God and why He allows some of us to be here for more than a century and others for just over a year, but He uses each one of us for His purpose the same.
    My heart is aching for you Tim and Ang. But I'm finding comfort in knowing that Bella is in the same place as my grandma. I know that she'll take care of Bella until we can all join them someday. I'm so relieved to know that they are both in a place where they are happy, not in pain, and with our Lord. We know where to find them and as we choose to be in faith each morning we know that someday we will be with them again.

    A flood prayers will carry you along with God's arms at this time.

    I love you

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  133. Dear Ringgold family,

    Words cannot express how deeply saddened I am for your loss. May you find comfort in your faith in the upcoming days, weeks, months and years. Thank you for sharing your beautiful daughter, Bella, with us and for teaching all of us about unconditional love. I will continue to pray for your entire family.

    Stacey (Missouri)

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  134. Tim and Ang:
    I am still in shock and teary eyed after a long night of no sleep. Bella's passing has deeply disturbed me and I just cannot imagine how you guys must feel.
    I am grateful she was able to cross over with her mommy and daddy by her side. She waited for you both to be with her.
    Such an incredible fighter she was and a teacher to the world.
    I cannot help but plead with the lord and ask why! Why did you take her after all she had been through?
    I am ashamed to admit I am also mad at the lord for he put her through so much just to steal her away in the end!
    Her life had barely begun! I know he has a plan for us all and that our path in this life is already set when we come into the world. I cannot but help wonder though....why do the innocent children have to endure so much and leave us so soon?

    Godspeed Bellababy I will surely miss you baby girl. You will always be remembered and loved. Thank you for becoming a part of my life and helping me to see renewed faith.
    My thoughts and prayers are with you Ringgold family you were both so dedicated and caring of Bella. Tim thank you for sharing your families story, someday I hope you can find Peace with all of this. She did indeed get taken home cured of a horrible disease.
    Ali honey your an amazing big sister.
    your friend,
    Marsha in Belvidere, IL.

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  135. Dear little Bella, the tears that I cry are not for you, because I know you are in a much better place. The tears are for your family, the ones you know and the ones you've never met. We live here now, but one day we too will pass from this world to the next. When we do, please be there to greet me! I would love a hug from you! Bella, pray for us!

    Tim, Ang and Ali....I hurt for you, I pray for you. Thank you for sharing your beautiful daughter with us. May God send His angels to comfort you with peace of heart and mind.
    Lots of love,
    Mandy from Louisiana

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  136. Gma Alice in CaliforniaOctober 12, 2010 at 6:48 AM

    Dear Tim, Angelique and Ali:
    There are no words to express my sorrow for your family. Bella was an amazing little girl with an equally amazing family. She is "Home" and no longer in pain. Jesus is holding her in his loving arms and he will comfort you as you grieve the loss of your precious little angel. She touched so many of us and I thank you for sharing your journey and family with us. I will forever remember you all. May God continue to uphold you. With love, Gma Alice

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  137. Tim, Ang, and Ali:
    I am so, so sorry. I have been reading your blog so long, this hurts so much - like it was a member of our family. Thank you so much for sharing Bella with my family and the world. The only thing that helps me right now is knowing that Bella is pain free in Heaven - and God and angels can hug and squeeze her all day long. Tim - please keep blogging, at least for a while. It has become a ritual in our family to check your blog every evening before we go to bed. Love to you all,

    Beth, Jon, Andrew and Emily Franzosa in Cincinnati, OH

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  138. what a beautiful way for bella to leave...she was such a fighter. she touched me in a way I never new existed. that was such a moving post, thank you for sharing. i love her sweet little face, she looks at peace. still praying and will continue on this journey with your family

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  139. To Bella's amazing family,
    I am so sorry for your loss and the pain you are going through. I read Bella's update every morning and pray for her. I will continue to read your story and will pray for all of you. My daughter is 4, and I can't even imagine how she would handle it if she lost her little brother. May the Lord bring you all peace. I am sure Bella is in heaven telling Jesus how she was born with this terrible disease, and now that she is home it is cured.
    Amy
    Minneapolis

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  140. Dear Tim, Angelique, Ali and Bella, We are so very truly sorry for your pain. Bella is an absolutely amazing gal. She has taught the world so much! God's plan has taken another step... you have been so strong and found so much within yourselves through this, thank you for sharing it all with us. We continue to send good energy and love your way.
    Love, The Setto Family

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  141. thank you for sharing her story with us Tim - I can't imagine your family's pain in a time like this. her story is an amazing one, and you are incredibly strong for being able to share it for her as you have. thoughts and prayers are still coming. please let us know if we can do anything more back here in the western region.



    Sabre Donovan

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  142. My heart is bursting with pain right now, worrying for your family and for the road that lies ahead. I know the journey just to this point has been a mix of highs and lows, and that there are more to come. Our prayers remain with you from Birmingham, Ala.

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  143. I WEEP - In memory of Beautiful Bella

    I weep for the Ringgold's who loved Bella so much,
    Mommy, Ali, and Daddy with his tender loving touch.

    I weep for the nurses and doctors who fought, putting minds together as they were taught.

    I weep for extended family and all of their fears, waiting days and nights anxious to hear.

    I weep for the lives that Bella has touched, whose hearts became invested and prayed so much.

    I weep for all families who have such a child and the horrible disease that runs so wild.

    I weep for Bella and her life that could have been, watching her grow up...would that have been a sin?

    I weep for Bella and what she has endured, but thank her for suffering to help doctors find a cure.

    I weep for myself for what now can I do? Carry Bella's light in my heart always letting it shine through.

    I weep for Tim selflessly sharing this journey, changing lives around the world in Bella's precious memory.

    I weep for Ang the quiet strength behind scene, a precious mother's love, so deep and pristine.

    I weep for Ali, who has brought us such joys, no longer to share with Bella her most favorite toys.

    I weep for the Ringgold's who loved Bella so much,
    Mommy, Ali, and Daddy with his tender loving touch.

    With much love and gratitude....Neysa

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  144. Bella- you are the bravest, most determined, and most special special girl. You taught me many things, a different perspective and to take care. I was privileged to be able to take care of you. I learned everyday and strived to be a better nurse for you.
    Ringgold family- I am so so sorry for your loss. Please know how much Bella has touched my life and how thankful I am to have been part of it. We have learned so much from her and YOU.
    With lots of love,
    God Bless
    your nurse Bre

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  145. I am so so sorry to hear this news! I have wondered many times how Bella could continue on in this life, but then would stop and remember that only God knows what she could handle and would just pray for healing.

    There is so much that could be said, but there are no words to make it better. The only thing that comes to mind is Job 1:21 ~ the LORD gave, and the LORD hath taken away; blessed be the name of the LORD.

    Love and prayers to all of you,

    Dana Mordecai
    Columbus, MS

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  146. Oh, my heart broke when I read this. We are friends with the Edling family and every night our daughter has religiously added Bella and Daylon to her prayers. As an adult, we understand that sometimes the Lord has a different idea of healing in mind than we do...While I'll have to explain to her that Bella is completely healed now, I will be praying for your family. What an amazing strength you as parents have, and Ali and Bella. She was a strong and determined girl...but the Lord needed her elsewhere. And now her story of fighting until the very end can be shared with so many people. We will pray for your family and please know that so many of us parents are feeling a good portion of your sorrow and joy, she is at peace...and I am sure she would want you to be too. Thank you for sharing your story, and thank you for reminding us how precious life is.

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  147. I awoke with this song on my heart and now I know why. Rest in sweet peace Bella.

    Wish You Were Here - By, Mark Harris

    I wanted to tell you how closely I've kept
    The memories of you in my heart
    And all of the lifetimes that we had to share
    Live even though we're apart
    But don't cry for me
    'Cause I'm finally free

    To run with the angels
    On streets made of gold
    To listen to stories of saints new and old
    To worship our Maker
    That's where I'll be
    When you finally find me

    No don't you be weary cause waiting for you
    Are wonders that you've never known
    Just hold on to Jesus, reach out for his hands
    And one day They'll welcome you home
    And that's when you'll be
    Finally free
    Finally free

    I wish you were here, I wish you were here

    And all of the dreams that you treasure
    Will soon come together
    And that's when your sorrow will find tomorrow
    And you will rise again

    We'll run with the angels on streets made of gold
    We'll listen to stories of saints new and old
    We'll worship our maker that's where we'll be
    When you finally find me

    I wish you were here

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  148. The words just dont want to come to me this morning. So many hearts are breaking and mine feels shattered. I understand the feeling of serenity you experienced...after I cried and begged God yesterday I was filled with a sense of peace for Bella. I am so sorry for your loss. Bella touched me in a way I never thought someone I have never met could. Wishing I was with you so I could wrap my arms around each of you.

    Tim if you wouldnt mind reading this to Bella for me...one more time.

    Bella- Sweet beautiful little one. You have changed me forever and in so many ways. You fought so hard and I am so proud of you for the strenghth that you had through this entire process. You have touched so many lives...I wonder if you know now. Do you see how many people love you? How many hearts that are broken today? Even though the pain I feel today is so deep and nothing like what I have experienced in my life (nothing comparable to mommys, daddys and Alis) I would have joined on this ride again...in a heartbeat. You will continue to be and always be one of my last thoughts before sleep just as you have filled my prayers for months. I will always remember you Bella and will continue reading as long as your daddy keeps writing. I will never look at the tab from top or a soda the same way again. It will always be a reminder of you for me. I was so close to 300 yesterday and I couldnt wait to tell you when I finally got there. I did this morning and cried because of it. I hope you know what a hole you left behind. Sending you hugs, kisses and bunches of love. Today, tomorrow and always. xoxoxo

    Denise WI

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  149. My heart is broken for your family. What a lovely thought, though, that Bella is finally pain free. My prayers are with your family during this hard time. I am so, so sorry.

    Heather, Kansas

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  150. I am so sad to hear this news. Thank you for sharing your story with us. You are all an inspiration.

    Betsy
    NY, NY

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  151. You are all in my prayers.
    The Tiny Rosebud God Picked to Bloom in Heaven

    The Master Gardener
    from heaven above
    Planted a seed
    in the garden of love,
    And from it there grew
    a rosebud small
    That never had time
    to open at all.
    For God in His perfect
    and all-wise way
    Chose this rose
    for His heavenly bouquet,
    And great was the joy
    of this tiny rose
    To be the one our Father chose
    to leave earth's garden
    For one on high
    where roses bloom always
    And never die.
    So, while you can't see
    your precious rose bloom,
    You know the great Gardener
    from the upper room
    Is watching and tending
    this wee rose with care,
    Tenderly touching
    each petal so fair.
    So think of your darling
    with angels above,
    Secure and contented
    and surrounded by love,
    And remember God blessed
    and enriched your lives, too,
    For in dying your darling
    brought heaven closer to you!

    I thought of this poem to send you. God Bless you all.

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  152. I cried from the moment I started reading. I know that Bella is in a better place, but I also know how badly your family must be hurting now. You did all you could do.

    Bella has taught so much to everyone through her fight with EB and then with transplant. It's so amazing that I can be so heartbroken over a little girl I've never met, and never would have. My heart breaks for your family and I hope you feel the love pouring out of all these comments.

    I'm so sorry for your loss and so happy for Bella's gain. She is at peace and no longer in pain.

    All our love,
    Krystiana and family, from Maine

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  153. I am so sad to read this update. Bella has changed my life, I will never forget your beautiful girl. It was definitely perfect that Bella's song came on the ipod. God had his hand on your family and will take care of Bella now until you join her again.

    Many prayers.

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  154. My heart is breaking for you. I am so sorry for your loss.

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  155. Dear Tim, Angi and Ali, I am so very, very sorry to hear of Bella's passing. I haven't been able to stop the tears, I really BELIEVED that she was healed, and I guess she was...but in God's way, and not mine. Your story of her final hours was full of such grace, and tenderness. My heart is breaking for you all, and for myself, because in my selfishness, I am sad beyond belief. Out of my sadness, I will find strength to send you comfort, and hope for the future. Thank you for allowing me to share in a tiny part of the miracle that was Bella's life. She has touched me in ways I never expected. And she, along with you all, will be in my heart forever. Love to you all, and I will continue to follow your journey, and keep you all in my prayers, until I can pray no longer...Blessings Sweet Angel Bella, beautiful baby girl, you are finally Home, and have finally been healed!

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  156. Oh sweet,darling girl....you gave it all you had. I am grateful you are Home now and free of pain. Bella, I said it yesterday: Your gift to the world is LOVE. And your daddy has shouted it from the rooftops so that all the world could hear. Truly. As I look at comments from around the world I marvel at how many people you have brought together, all filled with love for you and your family. Those who have followed you have become a family in their own way, as we have been unified in our love and prayers for you. Thank you so much for that. Ringgold family, thank you for giving your daughter to us. You have let us into every recess of your life, and have been such an example of faith, grace, and belief in the Lord. Thank you so much for taking the time to let us into Bella's last moments...such an intimate thing, yet you have always willingly shared the intimacies of your days. And in doing so, you have allowed so many of us to see how a joyful spirit can shine through even when the clouds are dark and heavy. Thank you for your faith. Your strength. Your love. Thank you for the gift of your daughter. Both your girls are truly blessed to have you as parents. Rest now. Remember your precious girl and love on that sweet Ali. I pray you will be at peace, as I know Bella is up in heaven.

    Elle in Virginia

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  157. I just heard about your family and their trial by fire this week. Just in time to hear of Bella's "happy ending" and your great grief. I know all too well that knowing our children are safe with Jesus doesn't make saying goodbye to them hurt any less. It gives us hope, but the tears still come. It gives us peace, but our arms still ache.

    Much love to your family.

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  158. Tim, Ang, Ali - There aren't enough words to tell you how deeply sorry I am for your loss. Your tiny Bella had a mighty spirit. Know that she touched so many lives and taught so many lessons. In the past, when I have commented, I left this quote for Bella. Now, I suppose I will leave it in its entirety for you.

    "If ever there is tomorrow when we're not together... there is something you must always remember. you are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart... I'll always be with you."
    — A.A. Milne

    Bella will always be with you - and all of us who have come to love her from far away.

    Love from WA (Annie)

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  159. Oh our hearts broke and the tears just kept coming when we saw that Yours & Our Little Angel had left this world and joined her Heavenly Father. There is nothing more precious than a baby. We had a baby girl pass at 13 days old ( 34 yrs ago ) It never gets easy, but you will always have her in your hearts and know that she is looking down on sll of you and it keeps you going. Heavenly Father needed her with him because she is one of his special angels and there is work for her to do up in heaven. God Loves and makes beautiful things. Bella is such a beautiful baby and so precious. What a wonderful blessing that she went in peace and that her Mommy got to hold her at the end and that all of you were by her side. Our Condolences and prayers go out to your family. Thank you for sharing your journey with us. We Love All of You and Baby Bella. Rest in Peace Baby Bella.

    All Our Love;
    Myrna & Dwight CA

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  160. I'm so sorry - I just can't imagine how hard this must be.

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  161. Dear Ringgold Family,

    I'm sending you all thoughts of comfort during this time. Bella - beautiful, bright, brilliant Bella - has given gifts to so many in her short time. I wish desperately that she could still be with you, but I hope there is some relief in knowing that after all her hardships, she is enjoying truly well-earned, well-deserved peace.

    You gave Bella everything you could have given her; you loved her as much as a soul could love. Please do not think for a moment that you ever failed her. Rest in peace, sweet Bella, and watch over your beloved family until you are reunited!

    Keeping you in my thoughts,
    Claudia (Massachusetts)

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  162. I came across your blog today thru another blog I follow regularly, I am so sorry for your loss and just by reading what I have, Bella was such a blessed girl to have such a loving and caring family! I pray for all of you and that your heart be filled with wonderful memories..

    Sweet Bella I am sure you are now wrapped tight in God's arms looking down on your loving family!

    God Speed Little One ((hugs))

    Amanda

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  163. Anabella Ringgold...we will miss the way you made our days seem easy and I will live mine in that manner in your honor each day...
    I love and miss you so much already...
    I bet Gods arms feel wonderful as he embraces you... just like Mommy and Daddy...
    Our sadness is an overwhelming emotion we often run from, feeling weak and alone...You Bella, are neither of these.
    Please smile down upon us as we remember and honor the lessons and love you have instilled in us with your beauty and strength.
    At 5 a.m. I looked up to the starlit Heaven: a smile on my face for you and tears in my eyes for the ones you have touched.
    Our love... Grant, Lacy and Everlee

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  164. I just read the news on another blog, and with tears running down my face, I had to come here to see if it was true. I am sitting here in complete shock, as I am sure you have been, too.
    Your daughter suffered through more than anyone ever should have, in her brief time here on Earth. I will take comfort in knowing she is now healed and free of all the pain,tubes and dressings. She no longer has EB and is happily playing with other sweet angels in Heaven now.
    One day, you will all be reunited again, and it will be a glorious day!
    I will keep your family in my prayers and lift you up during this most difficult time.
    Cry for Bella, but also smile for her. She is now completely healed and is no longer suffering.

    Love and light from Hawaii,
    Tegan's Mama

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  165. I am so sorry for your loss. My husband and I have lost two baby boys to a genetic disease and it was the hardest thing I hope to ever go through. We rejoice though knowing that though their bodies were not made to function here on Earth, and they were suffering, that now they are free from pain, healthy and whole in the arms of Jesus. May God's peace be with you.

    Amy

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  166. I wish I could be there to hug all of you. I am so sorry. Bella is an amazing little girl and i will always have her in my heart she has taught me alot in the her short time on earth. I love you Bella and now you may be free of all this pain. To the Ringgold family my thoughts and prays are with you during this time and i hope in time you all cam have peace in your hearts. Give Ali a big hug for me Love you all.

    Donna Gee
    Woodstock, Ontario
    donnagee2004@hotmail.com

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  167. Thank you for sharing Bella with us. I had a niece who died of JEB-Herlitz in January 2005 at 9 months old. I am sure that my sister and brother-in-law would have tried anything they could have tried to help Sadie, just as you did for Bella. I just wanted to say that I am so sorry for your loss, and I will be praying for your family. I look at the pictures of Bella, and I feel so much love for your little girl. I hope this comforts you and your family in some small way, knowing that others who don't even know your family have been touched by your beautiful girl. Thank goodness for Ali, who will bring such joy and perspective during your grief. Because of your faith, you will all be together again one day - I don't just say that lightly - I truly believe it.
    Love,
    Kimberly Hong, Georgia

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  168. I am crying for the loss of a beautiful child. God used her to help me see Him in a way that I have never done before. And one day I will meet Miss Bella in heaven.
    I cannot thank you enough for sharing this journey in such a personal way. And like you I now will grieve the loss of Miss Bella.
    sg-KS

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  169. Dear Ringgold Family: I am so sorry for your loss. Bella's Blog was something I always looked forward to reading. It was quite a journey and thank you for letting us go along for the ride.
    Angel Bella and Leah, and all other EB angels are playing in paradise, EB free and glorious.
    Please take care guys. We all love you so much. Love and Peace. Love Leah's Nana

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  170. I am so sorry for your loss. I was shocked when I opened the blog this morning - I knew things were bad but I so badly wanted to believe that Bella would pull through & be that 'miracle'. I haven't stopped thinking of Bella or your family in weeks & this past weekend I felt such peace that she was going to be okay. I guess she is okay just not in the way I imagined. My thoughts & prayers are with you & your amazing family.

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  171. I AM THERE
    by James Dillet Freeman

    Do you need Me? I am there.
    You cannot see Me, yet I am the light you see by.
    You cannot hear Me, yet I speak through your voice.
    You cannot feel Me, yet I am the power at work in your hands.
    I am at work, though you do not understand My ways.
    I am at work, though you do not recognize My works.
    I am not strange visions.
    I am not mysteries.
    Only in absolute stillness, beyond self, can you know Me as I am, and then but as a feeling and a faith.
    Yet I am there.
    Yet I hear.
    Yet I answer.
    When you need Me, I am there.
    Even if you deny Me, I am there.
    Even when you feel most alone, I am there.
    Even in your fears, I am there.
    Even in your pain, I am there.
    I am there when you pray and when you do not pray.
    I am in you, and you are in Me.
    Only in your mind can you feel separate from Me, for only in your mind are the mists of "yours" and "mine".
    Yet only with your mind can you know Me and experience Me.
    Empty your heart of empty fears.
    When you get yourself out of the way, I am there.
    You can of yourself do nothing, but I can do all.
    And I am in all.
    Though you may not see the good, good is there, for I am there.
    I am there because I have to be, because I am.
    Only in Me does the world have meaning; only out of Me does the world take form; only because of Me does the world go forward.
    I am the law on which the movement of the stars and the growth of living cells are founded.
    I am the love that is the law's fulfilling.
    I am assurance.
    I am peace.
    I am oneness.
    I am the law that you can live by.
    I am the love that you can cling to.
    I am your assurance.
    I am your peace.
    I am one with you.
    I am.
    Though you fail to find Me, I do not fail you.
    Though your faith in Me is unsure, My faith in you never wavers, because I know you, because I love you.
    Beloved, I am there.

    [A copy of "I Am There" is now on the moon...carried there on the Apollo XV voyager by Astronaut James B. Irwin, and left on the moon for future space voyagers.]

    We love you!
    Brian & Cindy Barr and
    Russell & Rachelle

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  172. praying for your family,so sorry.

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  173. Praying through the tears.

    Barbara and AJ (RDEB), Rochester, MN

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  174. Tim, Ang, and Ali,

    I weep with you and for you this morning at the news of Bella's passing. You are so right, she has even more to teach us! I will continue to pray for God's peace and comfort as you say this "goodbye until later".

    Rachel in CA

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  175. I just started reading your posts when a family member was diagnosed with EB. I am truly sorry for your loss. Baby Bella is resting in peace and will always be in your hearts. My thoughts and prayers are with your family through this difficult time.

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  176. Ringgold Family,
    NO NO NO. Shocked and so deeply sad, I don't know any words that can comfort your loss.

    Bella - SO precious, SO brave, SO strong, SO BEAUTIFUL. I'm happy you are free of the pain of EB, but I don't want to let you go. We will always remember you. We will always have a prayer of gratitude in our hearts for you, as our own Butterfly Girl will surely benefit one day from your courageous sacrifice.

    God grant you peace and comfort. God bless Bella.

    Love,
    The Provost Family
    Palatine, IL

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  177. Many prayers for you and your beautiful family. The Lord has given us another beautiful angel to watch over all of us!
    I hope you all find some way to move forward and honor Sweet Bella!
    The night has earned another bright star.
    Shannon from Mn
    Eore31@aol.com

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  178. I'm so sorry for your loss but what a beautiful beautiful story you have. God bless you all through this difficult time.
    Krista
    Rock Rapids, Iowa

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  179. I am so sorry to hear of the loss of Bella. She taught us so much in her short time here. Thank you for sharing this journey with us. It has certainly inspired me to be a better person and appreciate everyday. May you find peace and comfort in know that Bella is no longer in pain and suffering, but in the most wonderful place. You will continue to be in our thoughts and prayers.

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  180. I am so very sorry. Bella DID go HOME though and she is now free from that disease. I know it wasn't the home you, or any of us wanted, though. She has meant so much for me and always will. During my sister's wedding, I thought of her and prayed for her. She will be missed so much. Prayers for your whole family.

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  181. My deepest condolences. I did not get a chance to read Bella's beautiful story until last night when I saw a post on my friends' Patrice and Matt's Facebook. I prayed last night and asked the Lord to take good care of your beautiful baby girl. He has welcomed her home to run and play and sing and dance! I will be praying for you and your family during this time. Blessings.

    Dorothy Wu
    Raleigh, NC

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  182. My heart was crushed today and I cried. You see I have been following your blog for a very long time now Almost since the beginning and I feel like I've become a part of your family. Every night before I went to bed I would check to see if you had posted and pray for sweet Bella. You painted a great picture of her last day. One that I soon won't forget. I thank you for making us your blog readers a part of her very special life!

    We love you
    Michael, Teri, Joshua, Aaron,and Benjamin Joseph
    From Peoria AZ

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  183. Sorry for your loss. Will be praying for your family. EB is close to me. I am a nurse who took care of a baby boy with EB, I was with him until his last day on earth. He is close to my heart and so special, just like your daughter!

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  184. Who knew when sweet little Bella became a butterfly and earned her wings, she would just fly home to heaven? Yesterday, Bella said "Yeah, I was born with this rare skin condition, but when I came Home from the hospital, it went away".

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  185. My pain over Bella is so real. I hurt. I want you to be able to hold her, play with her, giggle with her, cuddle her and smother her with kisses. I hurt for you. It is a real hurt......... and I've been following on the internet. She was in pain and now I am in pain. I'm glad she no longer hurts.

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  186. Thank goodness families are forever. I know you will see your little girl again, healthy and happy. We'll keep you in our prayers.

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  187. I paid tribute to little Bella and your family on my fb page today:
    "http://careforanabella.blogspot.com/
    Remembering a little girl that bravely fought for life following a bone marrow transplant. It is the lessons learned from little soldiers like her and her brave family that will help us treat children with genetic disorders in the future. Rest in Peace and with no pain Bella."
    The strength of your little girl and your whole family is amazing and we are all in pain but also celebrating her short life with you.
    ~Sarina in Utah

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  188. My prayers are with you and your family. John 14:16-18 Thank you for sharing Bella's gift of life with us! We are all changed forever.

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  189. Tim and family,

    My heart aches for you right now. I am so sorry that Bella's little body was not able to overcome this trial.
    I will forever think of Bella when I see a butterfly. I will remember when I am in the midst of trials that there will be brighter days ahead.
    I feel peaceful about Bella's passing. Though the tears are flowing.
    A little girl that I never met entered my life. She showed me how to be strong even when things do not go your way.
    I am sure that Bella is hugging loved ones in heaven that were waiting anxiously for her return.
    I believe that we can be together again with our families in heaven after life here on earth. I believe this is possible.
    I pray that your memories of Bella will carry you through this difficult time.
    Love,
    Cheryl from Utah

    If you are interested in learning about what I believe this is a good source- http://www.mormon.org/eng/

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  190. Now Bella can always look back and say, "yeah, i was born with this rare skin condition, but when my Father took me Home, it went away."

    i wish she could've said it here on earth and i'm praying so hard for you guys. i know you will take comfort in her ultimate healing, but that doesn't make your pain any less devastating or real.

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  191. The world will never be the same without little Bella in it.
    But the world will also never be the same BECAUSE Bella was in it.
    We are sending you all the love and strength in the world.
    Love Lolly.
    London

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  192. My heart is heavy with pain and sadness for you right now. Your family will continue to be in my prayers. Thank you for allowing us to be a part of Bella's life journey. She is an amazing little girl who has taught us a lot about life and love.
    Kari
    Minneapolis

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  193. Tim...

    I posted about your story on my blog today, I hope that is OK? I just feel that you have done such a wonderful job of showing others how you have dealt with all of this and so many could learn something from your experience.

    I'd just like to say Thank You....I've learned some lessons since reading your blog over the last few months and I know I am looking at life in an entirely different way now...I Count My Blessings each and every single day....

    Much love and peace to you and your sweet family.

    God Bless...

    Tina
    Currently in Louisiana but always a Texas Girl

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  194. My thoughts and love are with you and and your family today. Bella's story touched me and I know she will forever stay with all of us who knew of her journey.

    Stacey
    NY

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  195. I am so sorry to hear of your loss. I found your blog through Jonah's blog and came to read about your sweet angel. I also found a song which without thinking belongs to your Bella, its called Angel's lullaby. May god give you the strength you need today and everyday to move forward as Bella has recieved her divine healing. And is free to run and play with our heavenly father.

    Gilda Flores, Texas

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  196. I just don't know what to say except that I love you both (and Ali too) so much and I just wish I could be there to give you a hug. I pray that God's peace will continue filling you up these next days, weeks, months as you miss your sweet girl. The EB Community is behind you and holding you up in prayer and love. I've been so touched by all the thoughts, prayers, and statuses pertaining to Bella on Facebook this morning. That little one has changed the world for the better. She did more in her short time than most of us do in 60 years. I miss her so much and I never even got to meet her in person. I know that she and Leah and Gabe are hanging out, loving on each other, running and jumping at the feet of Jesus in their brand new skin! What a sweet thought. Prayers and more love and hugs than I could possibly express through a keyboard.

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  197. I am so sorry for your loss. Words cannot express how sorry I am for you. I am praying that God will provide you the comfort and strength you need.

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