Ali givin' a little love to Bella...
Good news... the roller coaster did not stop at the bottom. It just headed back up again!
No infection in lungs.
Normal heart rate.
No fluid boluses.
No increase in pressers.
Weaned her vent from a rate of 28 breaths per minute to 16 in one day (that is HUGE).
Again, we are POOPED, as is Bella. But we're in much better spirits today. Thank you so much for the quality and quantity of your letters, wishes, prayers, thoughts, intention, and hopes for Bella. They worked. Again. You're hired. Ang and I both pulled long shifts reading the blog comments to her. I read the first 77 from this morning to her, and Ang read the rest this evening. Bella got literally HOURS of reading by her mommy and daddy today. What is so great about is that she didn't just benefit from the sounds of our voices, she got to hear some of the most inspirational and motivation outpourings of human love and spirit I have ever witnessed. I usually can read the comments to her without getting choked up, but even I was crying while reading some of them this morning to her.
It felt really good to cry. It felt like I am still invested in my heart to Bella, and have not lost my true self in assimilating into a full time employee of the hospital.
I was so tired at lunch I tried to put a to-go top on my ice tea...
I also want to thank those of you comfortable enough to share your names and locations on every comment you leave. I feel like we are really growing close to each other. Your personalities shine in what you write and how you write as well, and I feel a genuine bond to the person on the other end of the computer. To those of you that do not sign your name or location, please consider doing so, I so want to thank you in my heart, and know where another beam of light is raising into the universe on Bella's behalf.
Someone did get it right, the world-wide web of energy being transmitted up and out on Bella's behalf is an amazing phenomenon in an of itself. There are prayers and intentions and thoughts of and for Bella round the globe, round the clock. I am convinced THAT is what is holding ALL of us here together at this point.
I can't remember if I told you this... yesterday, when Dr. Wagner came to visit, I told him that the timing of her blood pressure returning was when I started reading your comments to her. His immediate comment was, "Well, KEEP READING TO HER!"
So there you have it. It's doctor's orders! YOU ARE BELLA'S PRESCRIPTION!
BIG MOMENT TODAY...
For the first time since maybe Bella was a week old, there is no mepilex bandages on her left leg! Today, we opted to discontinue that layer altogether and just run with a single rolled gauze for the whole leg, and tubifast. We used to use mepilex, then we downgraded to mepilex transfer, and now we've d/c'd that layer completely. Next will be to d/c the roll gauze layer. We are running with tubifast on arms and legs right now anyway, because doctors and nurses with gloves on equals lots of nicks, shearing, and wounds otherwise avoided. Plus, she's not exactly wearing any clothes, so it helps a little tiny bit with her temp.
I could probably go on about more stuff, but I honestly can't remember anything else to talk about and I am so so tired. So, I'm just gonna cut it off here for the day and say thank you.
One day, Bella WILL look back and say, "Yeah, when I was born, I had this rare skin condition, but when they brought me home from the hospital, it went away."
Check out our new door stop!