A view of Peter's Canyon Park in my neighborhood...
Well, it was bittersweet, but we made a long overdue jaunt over to Disneyland this evening to treat Ali to some princess time! Donned in her Belle ball gown, we set out, for the first time without Bella, and the first time without a stroller of any kind.
Once again, it was so... easy.
Nonetheless, we managed to have a little fun while we were there. Ali certainly did. Ang and I had a hard time. Bella's absence was tough. I actually said out loud at one point, "I MISS YOU BELLA!"
We also made a well needed trip over to the chapel to prepare for Sunday. It's gonna be so beautiful, I can't even begin to tell you. The memorial in MN was pretty tough to top, and I don't want anyone to think of it in that way; we want the two memorials to be unique each in their own way. I think we're going to accomplish that on Sunday. I am really proud of the work we are doing, and all the amazing help we are receiving. It has been such a blessing.
Driving home after dropping off Ali at daycare...
Tomorrow is a pretty big day. I am going to a two day intensive mastermind seminar in L.A. and will be meeting Sir Richard Branson and Paula Abdul, among others. Tomorrow night Angelique joins me as we have VIP tickets to Sir Richard's annual charity ball for his Virgin Unite Foundation. We are extremely grateful to my good friend Joe Polish for allowing me/us to attend both events. Joe has been a close friend for years and has become a self made millionaire, and now spends his time teaching others to be successful but always doing more than you get paid for, and always donating to others. Joe is committed to helping me realize my vision of making EB a curable disease, so over the next two maybe three days, I'll be meeting quite a few enlightened entrepreneurs, some of which already know me and my story, many who don't. Please say a prayer that I meet and create relationships with the right people that can make big contributions to finding a cure!
I have to get to bed, but I wanted to respond real quickly to the commenter about prayer and heaven. I appreciated what theartfulgardner said about the continuum on existence. I feel the same way. However, I can't speak for my client as to why she continues to pray, but I can say that for me, I tend to agree with you on the fact that I don't pray for Bella the same way I did. In truth, I was really always praying for her body, and that's no longer relevant. I do say prayers of gratitude, sometimes more than others, and in that respect, I am still praying for Bella. I am thanking God for Bella, and her presence in our lives. I pray that she continues to make a difference in death as she did in life. I am grateful to keep her memory alive through this blog, and through sharing my story wherever I go.
I am grateful.
I am in pain, MAN, am I in pain, but I am still grateful.