I'm back from hot Argentina to cold and wet England. I'm still reflecting about yesterday post about God. Hope you are well. Always praying for The Ringgold family. Love, Mariana,UK
There were photographs I wanted to take Things I wanted to show you Sing sweet lullabies, wipe your teary eyes Who could love you like this?People say that I am brave but I'm not
Truth is I'm barely hanging on But there's a greater story Written long before me Because He loves you like this
So I will carry you While your heart beats here Long beyond the empty cradle Through the coming years I will carry you All my life And I will praise the One Who's chosen me To carry you
Such a short time Such a long road All this madness
But I know That the silence Has brought me to His voice And He says
I've shown her photographs of time beginning Walked her through the parted seas Angel lullabies, no more teary eyes Who could love her like this?
I will carry you While your heart beats here Long beyond the empty cradle Through the coming years I will carry you All your life And I will praise the One Who's chosen Me To carry you
I had to share...it always brings tears to my eyes. Not that I want you to cry.
Anabella Ringgold was born on May 27, 2009 with a rare skin disease called Epidermolysis Bullosa, or EB. She had the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.
I'm back from hot Argentina to cold and wet England.
ReplyDeleteI'm still reflecting about yesterday post about God.
Hope you are well.
Always praying for The Ringgold family.
Love,
Mariana,UK
Some song lyrics by Selah
ReplyDeleteI Will Carry You
There were photographs I wanted to take
Things I wanted to show you
Sing sweet lullabies, wipe your teary eyes
Who could love you like this?People say that I am brave but I'm not
Truth is I'm barely hanging on
But there's a greater story
Written long before me
Because He loves you like this
So I will carry you
While your heart beats here
Long beyond the empty cradle
Through the coming years
I will carry you
All my life
And I will praise the One Who's chosen me
To carry you
Such a short time
Such a long road
All this madness
But I know
That the silence
Has brought me to His voice
And He says
I've shown her photographs of time beginning
Walked her through the parted seas
Angel lullabies, no more teary eyes
Who could love her like this?
I will carry you
While your heart beats here
Long beyond the empty cradle
Through the coming years
I will carry you
All your life
And I will praise the One Who's chosen Me
To carry you
I had to share...it always brings tears to my eyes. Not that I want you to cry.
Sending my love to all and sweet kisses to Ali.
Denise WI